End of Life Care in Milton Keynes: An Exploratory Qualitative Case Study of a Specialist Palliative Care Service
Supervisors; Kerry Jones, Carol Komaromy and Sam Murphy
This PHD is joint funded by Willen Hospice in Milton Keynes. The aim of this study is to ascertain the place and role of a specialist palliative care service within Milton Keynes, though an exploratory single case study utilising a mixed methods approach. This may include qualitative interviews, observations, focus groups and analysis of policy and documentation. The study will include perspectives of hospice patients, carers, staff, professionals within the wider Milton Keynes health community and also the local society. This will elucidate on the cultural perceptions of hospice care and how they relate to organisational culture and wider understanding of hospice care.
My background is in Disablity and Education. I qualified from De Monfort University in 2005 with a BA(Hons) Education and History, and have worked professionally as an education consultant, parent participation worker, disability and equality training coordinator, housing scheme manager, and most recently as an Independent Mental Capacity Advocate (IMCA). I achieved M.Ed from the Open University in 2012.
I am interested in participation and people's voices, and how these can influence policy and practice. I am particularly interested in vulnerable and minority groups including disabled, older people, mental health conditions and the terminally ill.
Death and dying, palliative care, patient perspectives, marginalised and vulnerable populations
Lifelong learning and holistic benefits of education and development on social issues including equality, parenting, empowerment and informed decision making
Gifted and talented education, dual and multiple exceptionalities in children's learning potential, social and emotional difficulties in learning and development of gifted children.
I have written and delivered training and workshops on supporting gifted and talented learners including speaking at the World Gifted Conference and creating and delivering subject specific courses to teachers, parents, young people and children. I have written several published articles on gifted and talented education in regular periodicals for Potential Plus (UK based charity) for education professionals, parents, children and young people.
I have written and delivered disabliity equality training for professionals in the public and private sector, and have delivered workshops for parents of children with disabilities.