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British nursing index bni - exported on 8/7/2016

Willingness-to-pay for reductions in care need: estimating the value of informal care in Alzheimer's disease

Objective: To estimate the value of informal care in Alzheimer's disease using contingent valuation.

Methods: A questionnaire was administered to 517 primary carers in four countries (UK, Spain, Sweden, and US). Dichotomous choice and bidding game methods were used to elicit their willingness to pay for a reduction in care burden by 1 h per day, or a total elimination of care needs. Further, the relationship between carer willingness to pay and carer and patient characteristics including disease severity and income was examined.

Thu, 07/20/2017 - 15:12

'Normal disruption': South Asian and African/Caribbean relatives caring for an older family member in the UK

Little has been written on informal care of an older relative among minority ethnic groups in the UK. This paper examines the meanings of being an informal carer of an older family member for South Asian and African/Caribbean carers. The analysis presented here is based on qualitative interviews with 21 African/Caribbean and 15 South Asian carers. Drawing primarily on the notions of biographical continuity, biographical reinforcement and biographical disruption, the meanings of caring are examined.

Thu, 07/20/2017 - 15:12

The caregiving role following percutaneous coronary intervention

Aim.  The aim of this study is to describe the experience of caregivers of individuals who have had a percutaneous coronary intervention (PCI).

Background.  Decreased lengths of hospital stay and an increased emphasis on chronic disease self-management increase the importance of carers in assisting in recovery and lifestyle modification.

Design.  Cross-sectional dual-moderated focus group design.

Thu, 07/20/2017 - 15:12

Alzheimer's disease: the psychological and physical effects of the caregiver's role, part 2

The purpose of this study was to investigate the physical and psychological effects on informal caregivers of looking after a person with Alzheimer’s disease. A descriptive survey was conducted in counties Galway, Mayo and Roscommon in Ireland using a simple random sample of caregivers registered with the Alzheimer Society of Ireland, Galway, or the Western Alzheimer’s Foundation. The findings from the study show that a significant proportion of caregivers reported poor self-rated health and depression. Restless sleep and a decreased tolerance for pain were also common.

Thu, 07/20/2017 - 15:12

Informal carers' experiences and needs when supporting patients through chemotherapy: a mixed method study

Informal carers provide important emotional support to patients having chemotherapy and assistance in monitoring and managing side-effects. If they are inadequately supported in this, patient and carer morbidity may result. This study explored needs of informal carers supporting patients with cancer having chemotherapy. The study used a mixed methods approach. Carers of colorectal or lymphoma cancer patients at one comprehensive cancer centre participated. Questionnaire data informed semi-structured interviews conducted with a subsample of respondents.

Thu, 07/20/2017 - 15:12

Dying at home: community nurses' views on the impact of informal carers on cancer patients' place of death

Giving patients with cancer a choice in where they want to die including the choice to die at home if they so wish, underpin the recent UK government policies and is embedded in the End of Life Care Programme. However, this presents increasing challenges for the informal carers particularly with an increasingly aging population. Despite the policy initiatives, there remain a persistent number of patients with cancer who had chosen to die at home being admitted to hospital in the last days and hours of life.

Thu, 07/20/2017 - 15:11

Hidden caregivers: providing appropriate services

3rd in a series of 5 articles on informal carers in the UK, focusing on carers who may be more isolated. 

Thu, 07/20/2017 - 15:11

How are you doing?

Family caregivers are indispensable, yet they often feel underappreciated and inadequately supported by nurses and social workers. When they visit a hospitalized loved one, they may never be asked, "How are you doing? How are you managing?" They need more help on two fronts: becoming better caregivers and avoiding becoming patients themselves.

Thu, 07/20/2017 - 15:11

Chair massage for carers in an acute cancer hospital

The Chair Massage service considered in this evaluation study was provided to carers, visiting in-patients at a major cancer hospital in the UK.

Thu, 07/20/2017 - 15:11

A qualitative investigation of seniors' and caregivers' views on pain assessment and management

The literature suggests that pain in the elderly, especially among seniors with dementia, is under-assessed and under-treated. This qualitative study solicited the perspectives of seniors, front-line nursing staff, nursing-home administrators, and informal caregivers of seniors with dementia on the current status of pain assessment and management. The views of these participants complement the research findings reported in the literature.

Thu, 07/20/2017 - 15:11