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Comparing Affiliate Stigma Between Family Caregivers of People With Different Severe Mental Illness in Taiwan

The family caregivers of people with mental illness may internalize the public stereotypes into the affiliate stigma (i.e., the self-stigma of family members). This study aimed to compare the affiliate stigma across schizophrenia, bipolar disorder, and major depressive disorder, and to investigate potential factors associated with affiliate stigma.

Wed, 06/06/2018 - 11:23

Young carers in Germany: to live on as normal as possible - a grounded theory study

Background: In contrast to a growing body of research on the situation of adult family care givers, in Germany hardly anything is known about the situation of children and teenagers who are involved in the care of their relatives.

Methods: In this Grounded Theory study 81 semi structured interviews have been carried out with children and their parents in 34 families, in which one member is chronically ill. 41 children and 41 parents participated and the sample is heterogeneous and diverse.

Thu, 07/20/2017 - 15:23

Supporting family carers providing end-of-life home care: a qualitative study on the impact of a hospice at home service

Aims and objectives: To explore bereaved family carers' perceptions and experiences of a hospice at home service.

Thu, 07/20/2017 - 15:21

Assessing the effect of a complex psychosocial intervention: a methodological note on determining measurement intervals

Aim Guidelines describing how to carry out a randomised controlled trial (RCT) provide no advice concerning when to measure an intervention effect. Possibly as a result, most papers give no rationales for the time frames chosen for data collection. This paper discusses four general strategies to identify when to collect data. Furthermore, an additional individual strategy concerning the current German young carers project is presented.

Thu, 07/20/2017 - 15:21

'The web is not enough, it's a base'--an explorative study of what needs a web-based support system for young carers must meet

The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis.

Thu, 07/20/2017 - 15:20

Young carers

The editorial on child maltreatment in the September issue of the BJGP prompted me to think again about young carers. It talked about the fact that many maltreated and vulnerable children do not have an administratively competent carer and that often parents have health issues such as alcohol misuse or physical or mental health problems that can affect their children. In general practice it is not uncommon for us to see the parents but not see the young people themselves.

Thu, 07/20/2017 - 15:20

Influenza immunisation uptake in carers

In 2005 the United Kingdom departments of health added 'carers' to the list of people that should be offered seasonal influenza immunisation by their general practice. We surveyed a sample of carers registered for care assistance with the charity Crossroads Caring for Carers. Over half (58%) were not aware that they are eligible for free influenza immunisation. Young carers without a chronic disease, were least likely to be offered immunisation and least likely to be immunised.

Thu, 07/20/2017 - 15:19

A Kaleidoscope of Hope: Exploring Experiences of Hope Among Service Users and Informal Carers in Health Care Contexts

Background: There is a large and diverse literature on the concept of hope in health care.

Thu, 07/20/2017 - 15:18

Informal carers' health-related quality of life and patient experience in primary care: evidence from 195,364 carers in England responding to a national survey

Background: We aim to describe the health-related quality of life of informal carers and their experiences of primary care.

Methods: Responses from the 2011-12 English General Practice Patient Survey, including 195,364 informal carers, were analysed using mixed effect logistic regressions controlling for age, gender, ethnicity and social deprivation to describe carer health-related quality of life (mobility, self-care, usual activities, pain, and anxiety/depression, measured using EQ-5D) and primary care experience (access, continuity and communication).

Thu, 07/20/2017 - 15:18