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Integrated dementia care: A qualitative evidence synthesis of the experiences of people living with dementia, informal carers and healthcare professionals

Background: In order to provide improved care provision, integrated care services are being developed. However, little is known about how people living with dementia, their families and healthcare professionals experience integrated care. Therefore, the purpose of this review of the qualitative literature was to examine the experiences and perceptions of integrated dementia care. Methods: This qualitative review synthesised findings from included studies identified from a comprehensive literature search.

Tue, 08/16/2022 - 20:25

Clarifying the information and support needs of family caregivers of nursing home residents with advancing dementia

Background: Research has identified inadequacies in the quality and quantity of dementia-related information, particularly end-of-life information provided to those living with dementia and their family caregivers. The purpose of this study was to identify what types of information family caregivers of persons living with dementia in nursing homes would deem useful in preparing them for their relative's end-of-life and assist them to make decisions about care along the dementia trajectory.

Fri, 01/28/2022 - 15:47

Investigating 'optimal time': perspectives on the timing of people living with dementia moving into care homes: research findings

This briefing summarises the findings of a study into whether there is a universal optimal time for people living with dementia to move to a care home. The research drew on the experiences of people living with dementia and family carers, as well as social workers and care home managers. It found that factors to consider include the wellbeing of the person living with dementia, the ability of family members to support them and the availability of suitable care home places.

Wed, 07/01/2020 - 14:16

Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective

Background: Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide optimal care. Previously, we reported a realist analysis of the health care professional perspective. Here, we report on family carer perspectives.

Wed, 01/22/2020 - 12:39

Caring for older people in the 21st century: 'notes from a small island'

Drawing on carer narratives from research undertaken in New Zealand, this paper considers the interrelationship between place and the care-giving experience. In doing so, it considers: first, how informal carers of older people experience the transition in the place of care from the home to care homes; second, how they negotiate new identities for themselves as carers in these new care settings; and third, carers' views on how we might develop more inclusive models of care in care home settings.

Thu, 07/20/2017 - 15:23

Principles of person centred care: part 2

Designed exclusively for those providing care within the care home, this two part title introduces carers to the values that underpin person-centred care. It assists them to develop their understanding of how principles of care should be reflected in their day-to-day practices by exploring the values of individuality, rights, choice, privacy, independence, dignity, respect and partnership. It goes on to look at the right service users have to take risks in their lives and how the care plan and risk assessment can assist to protect individuals from harm

Thu, 07/20/2017 - 15:21

Equal but different

Users, carers and the wider public are just as important to the real picture of long-term care provision and funding as local authority and NHS commissioners. So co-ordination is about more than agency structures.

Thu, 07/20/2017 - 15:21

An introduction to the mental health of older people: understanding later stage dementia

This learning object focuses primarily on the later stages of dementia and on managing the more significant or prominent challenges - and symptoms - associated with this level of dementia. The material aims to reflect, where possible, the experiences of people with dementia and their family carers. Many of the examples given are located in a care home setting although the issues are also very relevant to supporting a person with dementia in the community.

Thu, 07/20/2017 - 15:18

Continuing to care

Reports on a collaborative study of carers from across North Wales, whose relatives have moved to live in a care home. Interviews were conducted with 78 family carers whos relative had been recently admitted into a care home. Follow-up interviews were conducted 10-12 months later with a sub-sample of 29 carers. Discusses the the carers experiences and the implications for staff working in care homes. The research was conducted by the Centre for Social Policy Research and Development, University of Wales and the Princess Royal Trust for Carers.

Thu, 07/20/2017 - 15:18

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