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Care needs

What do caregivers value and is there agreement in perception of met needs between nurses and caregivers?

Introduction: There is an increasing reliance on informal caregivers to continue the care of patients after discharge. This is a huge responsibility for caregivers and some may feel unprepared for the role. Without adequate support and understanding regarding their needs, patient care may be impeded. This study aimed to identify the needs valued by caregivers and if there was agreement between acute care nurses and caregivers in the perception of whether caregiver needs were being met.

Mon, 02/03/2020 - 17:42

Needs assessment of informal primary caregivers of patients with borderline personality disorder: Psychometrics, characterization, and intervention proposal

Introduction. Informal Primary Caregivers (IPC) of people with borderline personality disorder (BPD) experience a significant burden, making it important to determine their specific needs. Objectives. Cross-sectional study aimed at adapting and establishing the reliability of the Questionnaire on the Needs of Family Members of People with Severe Mental Disorders to identify felt and unfelt needs that may or may not have been met in IPCs of patients with BPD and suggest intervention strategies to effectively address them. Method.

Mon, 09/09/2019 - 13:05

Unmet Needs for Family Caregivers of Elderly People With Dementia Living in Italy: What Do We Know So Far and What Should We Do Next?

Care of the elderly with dementia represents one of the major challenges for the modern society worldwide. The burden of dementia care often falls on the family members, entailing heavy psychosocial and economic consequences. The aim of this study was to evaluate the caregiver's perspective concerning the support for disease management on behalf of the physicians and the local Sicilian administrations (Italy), and the burden of care and effects on their lifestyle, to propose new prevention strategies and service for managing dementia and caregiver's burden.

Mon, 04/08/2019 - 14:28

Experience and needs of family members of patients treated with extracorporeal membrane oxygenation

Aims and objectives: To explore the experiences of family members of patients treated with extracorporeal membrane oxygenation. Background: Sudden onset of an unexpected and severe illness is associated with an increased stress experience of family members. Only one study to date has explored the experience of family members of patients who are at high risk of dying and treated with extracorporeal membrane oxygenation. Design: A qualitative descriptive research design was used.

Fri, 03/22/2019 - 12:40

Understanding the Care Needs and Profile of People Living at Home With Moderate to Advanced Stage Parkinson Disease

Background: In the United Kingdom, people with Parkinson disease (PD) and atypical parkinsonism will require more support with their care needs as the condition progresses.

Fri, 02/01/2019 - 11:07

The role and profile of the informal carer in meeting the needs of people with advancing Parkinson's disease

Background: Many people with Parkinson's disease (PD) (PwP) require care from either informal or formal carers, due to worsening symptoms. Carer strain is a recognised consequence of caring. However there are few data on the role and profile of informal carers and if this impacts on carer strain.; Method: People with moderate to advanced PD, with an informal carer were invited to participate.

Fri, 02/01/2019 - 11:01

Enabling future care

Little attention has been paid to the immense struggles facing disabled people and their caregivers as they try to plan their long-term futures. This book sets out practical ways to maximise future care options for such community care user groups. It focuses on the priorities of older caregivers and people with learning disabilities to give numerous suggestions for increasing control people have over their affairs and links these to central legislation and entitlement issues.

Thu, 07/20/2017 - 15:24

Does availability of informal care within the household impact hospitalisation?

This study assesses the effect of having informal support available at home on inpatient care use in Switzerland. The main contributions are to consider the availability of care regardless of its source, measured by multiple-adult living arrangements, and to examine this effect by type of inpatient care and source of potential support. A two-part model with region and time fixed effects is estimated to determine the impact of informal care availability on the likelihood of hospitalisation and length of stay, conditional on hospitalisation.

Thu, 07/20/2017 - 15:16

Supporting carers to stay in paid employment

This was published under the 2010 to 2015 Conservative and Liberal Democrat coalition government

Ministers have launched a series of pilots exploring ways to help carers balance work with their caring responsibilities.

Thu, 07/20/2017 - 15:13

Improving support for young carers: family-focused approaches

This paper looks at the work of 18 local authorities to create systems and support to help families with young carers. It explores some of the positive outcomes from taking a family-focused approach and showcases good practice in this field.

Thu, 07/20/2017 - 15:11

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