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Care of the sick

Recommendations from the Salzburg Global Seminar on Rethinking Care Toward the End of Life

Objective: In December 2016, 66 health leaders from 14 countries convened at the Salzburg Global Seminar (SGS) to engage in cross-cultural and collaborative discussions centered on 'Rethinking Care Toward the End of Life'. Conversations focused on global perspectives on death and dying, challenges experienced by researchers, physicians, patients and family caregivers. This paper summarizes key findings and recommendations from SGS.

Thu, 08/30/2018 - 10:37

The social consequences of living with and dealing with incontinence—A carers perspective

Incontinence is a discrediting and stigmatising condition for those who experience it, as it signifies a person who is lacking in self-control. For their carers, the very nature of undertaking ‘dirty work’ signifies a low status and low paid job. Those health care professionals higher in status and financial reward put distance between themselves and bodywork, especially bodywork that deals with bodily decay. However, little is known or has been highlighted about the social consequences that living with and dealing with incontinence can have on informal carers.

Thu, 07/20/2017 - 15:20

Supporting ‘Young Carers’ in Kenya: From Policy Paralysis to Action

African children who care for sick or dying adults are receiving less than optimal support due to confusion about whether or not young caregiving constitutes a form of child labour and the tendency of the authorities to play it “safe” and side with more abolitionist approaches to children's work, avoiding engagement with support strategies that could be seen as support of child labour.

Thu, 07/20/2017 - 15:16

Impact of informal care levels on discontinuation of living at home in community-dwelling dependent elderly using various community-based services

The aim of the study was to examine the effect of informal care levels on overall discontinuation of living at home, all-cause death, hospital admission, and long-term care placement for community-dwelling older people using various community-based services during a 3-year period. Prospective cohort study of 1582 community-dwelling disabled elderly and paired informal caregivers was conducted.

Thu, 07/20/2017 - 15:14

An Overview of the Demographics Profiles and Initial Results from the British Columbia Young Carers Study

The article looks at the initial outcome of the British Columbia Young Carers Study. The study has been funded by the Hamptons Fund at the University of British Columbia and the Social Sciences and Humanities Research Council. One of the components of the study is to examine the prevalence of youth caring within the general adolescent population. The first stage of the study involved a survey of high school students at an urban centre in British Columbia. They found that 12.2 percent of the students are young carers.

Thu, 07/20/2017 - 15:13

Attendance, achievement and participation: Young carers' experiences of school in Australia

Schools play an important part in the lives of children and young people who have caring responsibilities for a family member with an illness, disability, alcohol or other drug problem or mental health condition but many of these ‘young carers’ report difficulty in attending, achieving and participating in education. This qualitative research project aimed to gather young carers' views about school, the challenges they face in engaging with education and their peers, and ways that the system might better support others like them.

Thu, 07/20/2017 - 15:12

What do informal carers need from district nursing services? (Cover story)

More than 5 million informal carers provide support to individuals who wish to remain within their own homes. The role of informal carers in maintaining people within their own homes has been identified as crucial. This article considers the assessment of need of informal carers in the primary care setting, placing particular emphasis on the role of the district nurse as an advocate for informal carers when working with other health and social care service providers.

Thu, 07/20/2017 - 15:10

Carers

Presents a study which examined how the lives of young carers differ from other children and young people in the population who are not looking after someone who is sick or disabled. Method employed in the study; Personal and intimate care tasks undertaken by young carers; Effects of different caring experiences on children and young people's lives.

Thu, 07/20/2017 - 15:09

Culture shift: carer empowerment and cooperative inquiry

Government policy has directed local services to address the needs of carers as a way of maintaining care in the community. This study was initiated to enable carers to develop an information pack based upon their identified needs. Cooperative inquiry was the method used to ensure full participation of the carers. Group meetings were already in existence through a charity organization who provides a carers support network. The first author participated in a number of carers group meetings.

Thu, 07/20/2017 - 15:08