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Care, poverty and coronavirus across Britain

Carers, paid and unpaid, are at the forefront of our response to the Coronavirus, putting themselves at risk to protect us all. Yet, if you are a carer, for adults or children, you are more likely to be living in poverty. This is not right.

This briefing note updates our Make Care Count report which focuses on the link between care and poverty before the crisis. It describes carers’ experiences of the pandemic, prioritising the voices of carers throughout, before detailing how we can take the first steps towards ending poverty for carers in Britain.

Tue, 07/14/2020 - 13:16

Predictors of entering 24-h care for people with Alzheimer's disease: results from the LASER-AD study

OBJECTIVES: Many studies have investigated predictors of people with dementia entering 24-h care but this is the first to consider a comprehensive range of carer and care recipient (CR) characteristics derived from a systematic review, in a longitudinal cohort study followed up for several years.

Thu, 07/20/2017 - 15:23

The experience of carers in supporting people with intellectual disabilities through the process of bereavement: an interpretative phenomenological analysis

Background: This study explored the personal experiences of family carers and residential care staff in supporting adults with intellectual disabilities through the process of bereavement.

Method: A semi-structured interview was used to interview 11 carers on their experience of supporting adults with intellectual disabilities through the process of bereavement. The transcripts were analysed using interpretative phenomenological analysis (IPA).

Thu, 07/20/2017 - 15:23

The ethical evaluation of assistive technology for practitioners: a checklist arising from a participatory study with people with dementia, family and professionals

Purpose – Uncertainty over ethical impact may hinder uptake of assistive technology (AT) in dementia. This study aims to examine whether AT contributes to person‐centred care, whether users can participate in research and to explore ethical dilemmas with users, family and professional carers.

Thu, 07/20/2017 - 15:21

The importance of listening to family carers

This article describes the themes emerging from the author’s anthology of personal accounts of caring for a family member or friend with dementia, ‘Telling tales about dementia’. It explains the importance of family carers and suggests that the knowledge of family carers should be actively sought by professionals delivering services, discussing the barriers of patient confidentiality, examples of important information from family carers being disregarded, and the role of family carers in monitoring care and challenging professionals when necessary.

Thu, 07/20/2017 - 15:20

Exploring coping strategies of carers looking after people with intellectual disabilities and dementia

Purpose – Carers play a vital role in looking after people with intellectual disabilities (ID). Caring role can be stressful and challenging in nature. Carers use various coping strategies to deal with stressors. The purpose of this paper is to explore coping strategies of carers looking after people with ID and dementia.

Thu, 07/20/2017 - 15:18

Dementia care: involving people in Alzheimer’s cafes

An Alzheimer’s Café is a monthly social gathering in a friendly café-like atmosphere where anyone interested in dementia, especially people with dementia and their carers, can meet. In addition to offering a social outing, this group intervention also provides a structured programme of education and information about dementing illnesses and various types of support. This article explains how Alzheimer’s Cafés are hosted, and how care home staff are involved in them. Alzheimer’s Cafés follow a set routine and are structured around an annual programme of themed topics.

Thu, 07/20/2017 - 15:15

The birds and the bees

Sexuality and people with learning disabilities is a controversial subject. Research suggests that, although paid carers are starting to acknowledge the importance of relationships, attitudes may be more conservative among family carers and the general public. This quantitative study looked at the attitudes of each of these groups. The researchers also considered whether knowing someone with a learning disability has an impact on the views of the general public and if there were difference in attitudes towards homosexuality among the three groups.

Thu, 07/20/2017 - 15:13

Supporting carers: the carer

This film focuses on Rose Fernandes who cares for her mother, who has dementia, and her daughter, who is autistic and has learning difficulties. She uses direct payments to pay for people to help with her daughter’s care, but for her mother she relies on agency staff. She finds this method tough as the agency staff only come at certain times, leaving her to care for her mum alone throughout the night. Meanwhile, her daughter Crystal receives much more flexible care, but direct payments leave her with a lot of paperwork to do. Note: This film is no longer available.

Thu, 07/20/2017 - 15:10

Working in partnership with family carers: the importance of learning from carers' experiences

Purpose – This paper aims to discuss professionals working in partnership with family carers and the importance of learning from their experiences in designing and delivering support to themselves and people with dementia. 

Design/methodology/approach – Working in partnership with carers is a key goal of policy and practice. This paper demonstrates how this can work in practice. 

Thu, 07/20/2017 - 15:09

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