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Mitigating distress and promoting positive aspects of caring in caregivers of children and adolescents with schizophrenia: Mediation effects of resilience, hope, and social support

Assistance for distressed caregivers can indirectly facilitate recovery of the people being cared for, yet how resilience, hope, and social support mediate between caregiving burden and adjustment outcomes is unclear.

Tue, 12/20/2022 - 08:57

Developing "Care Assistant": A smartphone application to support caregivers of children with acute lymphoblastic leukaemia

Acute lymphoblastic leukaemia (ALL) is the most common childhood malignancy. Caring for children with ALL is an uncommon experience for parents without medical training. They urgently need professional assistance when their children are recovering at home. This paper documents the process of developing an Android application (app) "Care Assistant" for family caregivers of children with ALL. Key informant interviews and focus group studies were used before programming the app.

Tue, 12/20/2022 - 08:54

Qualitative analysis of perceived impacts on childhood food allergy on caregiver mental health and lifestyle

Background: Approximately 8% of children have food allergy. Yet, little is known about how parents cope with the burden of this disease.; Objective: This study aimed to describe the perceptions of food allergy-related mental health issues of parents of children with food allergy. Methods: Parents of children with pediatric allergist-diagnosed food allergy were recruited through allergy clinics and education centers in a large Canadian city.

Wed, 12/14/2022 - 12:31

Care demands experienced by family caregivers of children with Primary Immunodeficiency

Objective: to understand the experiences of family caregivers of children with Primary Immunodeficiency in view of care demands.

Methods: a qualitative research. Data collection was subsidized by an open interview with five family caregivers, and the data were analyzed using the Bardin Content Analysis technique, thematic modality. The Callista Roy's Adaptation Model of Nursing was used to interpret the data.

Tue, 12/13/2022 - 16:44

Care demands experienced by family caregivers of children with Primary Immunodeficiency

Objective: to understand the experiences of family caregivers of children with Primary Immunodeficiency in view of care demands.

Methods: a qualitative research. Data collection was subsidized by an open interview with five family caregivers, and the data were analyzed using the Bardin Content Analysis technique, thematic modality. The Callista Roy's Adaptation Model of Nursing was used to interpret the data.

Tue, 12/13/2022 - 16:43

Caregivers' voices: The experiences of caregivers of children who sustained serious accidental and non-accidental head injury in early childhood

Head injury is a leading cause of mortality and acquired neurological impairment in children. Head-injured children may have neurobehavioural deficits that persist for years following injury. Head injury can result in significant and persistent caregiver burden, including mental health issues, family stress and disorganisation, and unmet social and healthcare service needs. Few studies have examined the healthcare and social service needs of children and their families following head injury sustained at an early age.

Tue, 12/13/2022 - 16:35

Respite Care and Stress Among Caregivers of Children With Autism Spectrum Disorder: An Integrative Review

While parenting, in general, can be stressful, mothers of children with autism spectrum disorder (ASD) experience chronic stress comparable to combat soldiers. Research suggests that respite care may potentially reduce stress among caregivers. However, greater understanding of this relationship is needed. The purpose of this integrative review is to examine the relationship between respite care and stress among caregivers of children with ASD.; Sample and Eligibility: A final sample of 11 primary research reports were located using several databases.

Tue, 12/13/2022 - 16:09

Impact of Caregiving for a Child With Cancer on Parental Health Behaviors, Relationship Quality, and Spiritual Faith: Do Lone Parents Fare Worse?

Caregiving stress has been associated with changes in the psychological and physical health of parents of children with cancer, including both partnered and single parents. While parents who indicate "single" on a demographic checklist are typically designated as single parents, a parent can be legally single and still have considerable support caring for an ill child. Correspondingly, an individual can be married/partnered and feel alone when caring for a child with serious illness.

Tue, 12/13/2022 - 16:03

Caregiver Experience in Pediatric Dialysis

Background and Objectives: Pediatric dialysis is thought to be burdensome on caregivers given their need to assume dual responsibilities of parental and medical management of their child's chronic illness. In this study, we seek to describe the experience of parental caregivers of children receiving chronic dialysis for end-stage kidney disease.

Tue, 12/13/2022 - 15:54

"My Whole World Fell Apart": Parents Discovering Their Child Has Anorexia Nervosa

This was the first study to examine the experience of parents who discover their child was living with anorexia nervosa (AN), thus fulfilling a critical gap in the eating disorder literature. Gadamerian hermeneutic inquiry was the guiding philosophy and method used to investigate this topic. Dialogues with parents revealed the ambiguity inherent within discovery; the isolation, betrayal, and loss felt by parents; and the complicated family dynamics occurring during the process of discovering one's child has AN.

Tue, 12/13/2022 - 15:50

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