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Carer experiences of services for adults with intellectual disabilities and Co-morbid mental ill health or challenging behaviour

The aim of this study was to examine carer experiences with mental health services for individuals with dual disabilities in Australia. This qualitative study involved semi-structured interviews with nine parents with an adult offspring with an intellectual disability in 2016. Parents who had received a mental health service for their offspring within the past two years in Australia with adequate spoken English were included. Parents were asked four open ended questions relating to their experiences of mental health services for their offspring.

Mon, 11/23/2020 - 13:26

Biopsychosocial intervention for stroke carers (BISC): results of a feasibility randomised controlled trial and nested qualitative interview study

Objective: To determine the feasibility of recruiting to and delivering a biopsychosocial intervention for carers of stroke survivors. Design: Feasibility randomised controlled study with nested qualitative interview study. Setting: The intervention was delivered in the community in either a group or one-to-one format. Subjects: Carers and stroke survivors within one year of stroke onset.

Mon, 11/23/2020 - 10:36

Behavioural Activation for Depression in Informal Caregivers: A Systematic Review and Meta-Analysis of Randomised Controlled Clinical Trials

Background: Carers experience significant physical and psychological burden and are at increased risk of experiencing clinical depression. Although several psychological treatments have been shown to be effective for preventing and treating depression in carers, most are complex, costly, and not easily accessible to family carers. In this paper, we review evidence of effectiveness of Behavioural Activation (BA) for depressive symptoms in informal caregivers and report on its quality.

Fri, 11/20/2020 - 16:36

"You have got to get off your backside; otherwise, you'll never get out": older male carers' experiences of loneliness and social isolation

Loneliness is framed as an enduring problem for carers of all ages, including older carers; however, there is little examination of older men's experiences of caring, loneliness and social isolation. Based on interviews with 25 men (aged 68-92 years), we discuss findings from a study of older male carers' experiences of loneliness in England. Within their accounts, loneliness is framed as a future, rather than present, problem as caring provides a time-limited buffer to loneliness while concurrently increasing social isolation.

Thu, 11/19/2020 - 13:43

Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities

Introduction: The measures implemented to manage the COVID‐19 pandemic have been shown to impair mental health. This problem is likely to be exacerbated for carers. Method: Informal carers (mainly parents) of children and adults with intellectual disabilities, and a comparison group of parents of children without disabilities, completed an online questionnaire. Almost all the data were collected while strict lockdown conditions were in place.

Thu, 11/19/2020 - 12:27

Guidance for those who provide unpaid care to friends or family

Guidance for anyone who cares, unpaid, for a friend or family member who cannot cope without their support. This may be because they have a lifelong condition, illness, disability, serious injury, mental health condition or an addiction. 

Thu, 11/19/2020 - 11:51

Guidance for those under 25 who provide care for someone

This guidance is for anyone under 25 who cares for a family member who cannot cope without their support. This may be because they have a lifelong condition, illness, disability, serious injury, a mental health condition or an addiction. 

Thu, 11/19/2020 - 11:47

Coronavirus (COVID-19): providing unpaid care to adults with learning disabilities and autistic adults

This guidance is for anyone who provides unpaid care, such as friends or family, to adults with learning disabilities and autistic adults.

Mon, 11/16/2020 - 13:04

After the care journey: exploring the experiences of family carers of people living with dementia

While the burden of caring for people living with dementia has been well documented, considerably less is known about how carers transition into post-care life. This study aimed to understand the experiences of primary family care-givers of people with dementia after the person with dementia has died. A specific focus of the research was understanding the barriers to transitioning into a positive post-care life, and facilitators that help sustain carers as they move forward after their care journey has ended.

Mon, 11/16/2020 - 12:23

Lifetime Active Care: A qualitative study of long-term family carers of people with spinal cord injury in Australia

This study reports the findings of a qualitative, grounded theory study which explored the experiences of partners and other long-term family carers living with and supporting loved ones with spinal cord injury. The study is exploratory in that little was previously known about the experience of long-term care-giving in this context in Australia. Most research in this area has focused on this experience during the first 5 years postinjury. This study focuses on the experiences of family carers beyond that 5-year period.

Mon, 11/16/2020 - 11:14

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