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Co-production

Caregivers as researchers: An evaluation of early positive approaches to support (e-pats) in partnership with family caregiver co-researchers

Introduction: E‐PAtS is a co‐produced and co‐facilitated group‐programme to support caregiver wellbeing and positive development for children with intellectual/developmental disabilities. E‐PAtS has previously been evaluated in traditional ways. This study, explored the process and benefits of training three caregivers as co‐researchers in the evaluation of E‐PAtS.  Methods: Three caregivers were invited to serve as co‐researchers and provided with training/supervision.

Thu, 12/12/2019 - 13:10

Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review

Background: Patient/carer involvement in palliative care research has been reported as complex, difficult and less advanced compared to other areas of health and social care research. There is seemingly limited evidence on impact and effectiveness. Aim: To examine the evidence regarding patient/carer involvement in palliative care research and identify the facilitators, barriers, impacts and gaps in the evidence base.

Mon, 10/07/2019 - 10:49

Healthcare and the Co-creation of Value: Qualifying the Service Roles of Informal Caregivers

The study advances the debate on the co-creation of value in healthcare by treating the informal caregivers as a key organizational resource for the providers. Using the Dialogue, Access, Risk, and Transparency (DART) model developed by Prahalad and Ramaswamy as an interpretative key, this qualitative paper frames the role of the informal caregivers within the multiple experiences of value co-creation in which they are engaged. The central argument is that the informal caregiver performs three intersecting key roles: patient's advocate, system navigator and coordinator of care.

Fri, 04/12/2019 - 15:28

Co-design of a carers strategy for New South Wales: reflections on a new approach to collaborative policy making with carers

NSW is Australia's most populous state, with 7.7 million people (about a third of the Australian population). There are 905,000 carers in NSW. Carers provide ongoing unpaid support to people who need it because of their disability, chronic illness, mental ill-health, dementia or frail age.

Wed, 04/10/2019 - 15:45

Caring For Me and You: the co-production of a computerised cognitive behavioural therapy (cCBT) package for carers of people with dementia

Objectives: Carers of people with dementia face barriers in accessing therapy for mental health difficulties. Computerised cognitive behavioural therapy (cCBT) packages can be effective in treating a range of presentations; however, tailored packages for carers' unique needs are lacking. Our aim was to design a cCBT package for carers to address the limitations of previous online interventions, by including users and experts as consultants and collaborators throughout the project. Method: We adopted a three-phase approach to the development process.

Mon, 04/01/2019 - 12:31

Exploration of the perceived impact of carer involvement in mental health nurse education: Values, attitudes and making a difference

Academic settings are seen to be an ideal, although potentially privileged, environments in which to demonstrate meaningful and authentic involvement. Despite the lack of evaluation and evidence relating to the impact of involvement being noted in the early 2000's, there continues to be a lack of evaluative research in this area (Happell et al., 2014) with the examination of the carers perspective being even more limited.

Thu, 07/05/2018 - 09:29

Homeward Bound: Co-Designing the Pathway from Hospital to Home for Older People

Introduction and practice change: This project utilisied co-production methodology to enable health and social care practitioners, older people and their informal carers to work together to codesign an integrated care pathway from hospital to home. Aim and theory of change: The project aimed to improve the experience of older people transitioning from hospital to home. To achieve this aim the group co-designed a two-pronged service intervention: i. an admissions coordinator; and ii. discharge at home. Timeline: This has been a 20-month project, initiated in July 2013.

Thu, 07/20/2017 - 15:19

The ATHENE Project: The importance of bricolage in personalising assisted living technologies

Introduction: An aging population is fueling interest in assisted living technologies (ALTs) to support independence at home. Numerous ALTs have been developed and deployed, but uptake and use has fallen short of levels predicted by policymakers. A key reason is a lack of understanding of users’ needs. In this paper we report findings from the ATHENE (Assistive Technologies for Healthy Living in Elders: Needs Assessment by Ethnography) project, which is funded by the Technology Strategy Board under its Assisted Living Innovation Platform programme.

Thu, 07/20/2017 - 15:14

Principles of participation

The video explores how service user and carer participation has become an increasingly important part of how adult social care services are developed and delivered. The video uses the example of how Manchester adult social care services are involving service users and carers. The film highlights the jigsaw model of participation, this connects four aspects of participation: Culture, Structure, Practice and Review. For further details about the jigsaw model see SCIE Guide 17. Participation operates at many different levels, from individual care packages to service design and commissioning.

Thu, 07/20/2017 - 15:13

Dementia: participation in development of dementia care

Having been diagnosed with dementia at the age of 70, Brian and his wife June now actively participate in planning dementia care services in Gloucestershire. The film illustrates the range of activities they are involved in - developing a 'Living Well Handbook', giving talks and helping shape training tools. It also highlights how commissioners, support organisations and carers all have a role to play in enabling the person with dementia to share their knowledge and experience for the benefit of others.

Thu, 07/20/2017 - 15:13

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