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Communication

When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients

The aim of this study was to explore by whom, how, and when discussions about prognosis and end-of-life issues should be initiated with terminally ill patients, and the context in which these issues can be optimally discussed. Focus groups and individual interviews were conducted with 19 palliative care (PC) patients, 24 carers, and 22 PC health professionals (HPs). Participants had disparate views regarding by whom and when such discussions should be initiated, although a similar range of perspectives was expressed by all participant groups.

Thu, 07/20/2017 - 15:16

A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff

Most older people living in 24-hour care settings have dementia. We employed qualitative interviews to explore positive and negative aspects of the experience of family carers, staff and people with dementia living in 10 homes in London and West Essex, selected to cover the full range of 24-hour long-term care settings. The interview used open semi-structured questions.

Thu, 07/20/2017 - 15:16

Breaking the ice: Developing strategies for collaborative working with carers of older people with mental health problems

This chapter reviews a community based action research project undertaken within the Older People's Directorate of Shropshire's Mental Health NHS Trust. The project investigated how statutory bodies might best facilitate the involvement of carers. The work focused on carers of mentally infirm older people and the carers of dementia sufferers. The research sought to explore, and find solutions to, known barriers to participation such as poor communication routes, paternalistic organisation cultures and a non-homogenous user group. It was conducted in three phases.

Thu, 07/20/2017 - 15:15

Communication skills: forming and maintaining relationships with service users, carers, professionals and others

This resource looks at the benefits that are gained from the relationships that are built within social work. Using the voices of service users, carers and workers you will hear accounts of how the relationships that were created helped them to deal with the difficulties they faced.

Thu, 07/20/2017 - 15:15

Patterns of formulaic language in Alzheimer's disease: implications for quality of life

Purpose – This paper aims to demonstrate how fundamental social and psychological drivers can affect the language used by people with Alzheimer's disease (AD) and their carers.

Thu, 07/20/2017 - 15:15

Carer satisfaction with telephone consultations in a community intellectual disability unit

This paper reports on a survey of carer satisfaction with telephone consultations with doctors in a community service for people with intellectual disability (also known as learning disability in the UK health services). A 10-item anonymized carer satisfaction questionnaire was sent out following telephone consultations over a 4 week period with questions about suitability, effectiveness, efficiency and appropriateness of telephone consultations. Out of 13 questionnaires sent, 11 were returned. There was a high level of satisfaction with accessibility, effectiveness and suitability.

Thu, 07/20/2017 - 15:12

Social work education participation: access, payment and support

This video looks at the practical arrangements that need to be made around accessibility, support and payments to ensure that users and carers can participate in social work education and be rewarded for their input. The film will be useful for social work students, lecturers, tutors, social worker educators, people working more broadly in co-production/participation and service users and carers.

Thu, 07/20/2017 - 15:12

Carers' journeys

The material on this DVD reflects the views of a multi-ethnic group of carers and community members in Wolverhampton who meet regularly to share their experiences and hope for the future. Some issues for discussion are also suggested in the accompanying leaflet, including access to appropriate services, improving communication and better recognition of the role of carers.

Thu, 07/20/2017 - 15:12

Listening for the communicative signals of humor, narratives, and self-disclosure in the family caregiver interview

During interviews and conversations in health care environments, respondents often convey information in a humorous fashion, self-disclosure something very personal, or  tell detailed stories containing emotional content that is difficult to decipher and interpret. This article offers suggestions for achieving more productive and satisfying interviews with family caregivers who rely on humour to help them tell their stories.

Thu, 07/20/2017 - 15:12

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