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Decision making

A qualitative analysis of changes in relationship dynamics and roles between people with cancer and their primary informal carer

It is widely accepted that cancer is an intersubjective experience that impacts upon the psychological well-being of people with cancer and informal carers, as well as on couple relationships. This qualitative study examined the nature and consequences of cancer on the relationship between informal carers and the person with cancer, from the perspective of Australian cancer carers. Sixty-two carers (42 women and 20 men), across a range of cancer types, stages and relationship dyads took part in semi-structured interviews.

Thu, 07/20/2017 - 15:17

An outcomes focus in carer assessment and review: value and challenge

A focus on outcomes and a desire to improve assessment and support to carers are central to government policy, crystallized in the 2000 Carers and Disabled Children Act. This paper explores the benefits and challenges of implementing an outcomes approach to carer assessment and review, highlighted by a research and development project, undertaken in partnership with one local authority. The project developed and tested research‐based practice tools which aimed to promote carer‐centred practice, together with clarity in communication and recording of outcomes intended and achieved.

Thu, 07/20/2017 - 15:16

The relative importance of factors affecting the choice of bathing devices

There is only a small evidence base to draw upon when choosing assistive devices. Evaluations such as those funded by the Medicines and Healthcare products Regulatory Agency,* Department of Health, United Kingdom, generate data from which evidence-based guidelines can be compiled, but it is often difficult to determine the relative importance of the various factors involved.

Thu, 07/20/2017 - 15:16

Family caregivers' experiences of relinquishing the care of a person with dementia to a nursing home: insights from a meta-ethnographic study

Many people with dementia are cared for in their homes by family caregivers. As the dementia progresses, admission of the family member to a nursing home becomes inevitable. The aim of this meta-ethnographic study was to describe caregivers’ experiences of relinquishing the care of a family member with dementia to a nursing home. A systematic literature search of PubMed, Cinahl and PsychInfo, between the years 1992 and 2012, was performed, and 10 qualitative articles, based on 180 family caregivers’ experiences, were included.

Thu, 07/20/2017 - 15:15

Making a real difference

The National Institute for Mental Health England (NIMHE) was established in 2002, and from the beginning had a commitment to put people who use services at the centre of their work, and involve service users and carers in the planning and delivery of work. In 2004 the NIMHE executive team conduced a review of service users and carer involvement at all levels within NIMHE, with the aim of identifying what action was needed to develop a more co-ordinated and strategic approach. This article provides a brief overview of the review, its key findings and recommendations.

Thu, 07/20/2017 - 15:15

The Debenham Project: research into the dementia/memory loss journey for cared-for and carer: 2012-13

This report lays out the findings of research carried out between July 2012 and August 2013 for The Debenham Project in Suffolk, funded by the Norfolk & Suffolk Dementia Alliance. The research sought to obtain information from family carers and cared-for about the memory loss/ dementia journey; a profile of the carers and cared-for; their experiences; and also views from them and others on the positive and negative aspects of early diagnosis and early intervention of/by services.

Thu, 07/20/2017 - 15:15

Working in partnership with adult informal carers: policy and practice

In England and Wales alone, more than 5 million informal carers provide support to individuals who wish to remain within their own homes. However, research has identified that there is a limited understanding of the informal carer role among health professionals, and deficits in information sharing and the involvement of informal carers in decision making in relation to care packages. This article considers recent policy relating to this area, placing particular emphasis on the role of the district nurse in working in partnership with informal carers.

Thu, 07/20/2017 - 15:14

A decision model for community nurses providing bereavement care

Community (district) nurses play a significant role in assisting and supporting bereaved informal carers (family members and friends) of recently deceased clients of palliative care. Bereavement care demands a wide range of competencies including clinical decision-making. To date, little has been known about the decision-making role of community nurses in Australia.

Thu, 07/20/2017 - 15:12

An interprofessional approach to shared decision making : an exploratory case study with family caregivers of one IP home care team

Background: Within the context of an exploratory case study, the authors assessed the perceptions of family caregivers about the decision-making process regarding relocating their relative and about the applicability of an interprofessional approach to shared decision making (IP-SDM). They also assessed perceptions of health professionals and health managers about IP-SDM. 

Thu, 07/20/2017 - 15:12

The human occupational impact of partner and close family caregiving in dementia : a meta–synthesis of the qualitative research, using a bespoke quality appraisal tool

INTRODUCTION: In 2009, the United Kingdom Department of Health identified the need to assist families so that people with dementia can remain living at home. Occupational therapists could support families and their loved ones at home by understanding the human occupational impact of caregiving. This impact includes how one is influenced by values and motivated to perform activities shaped by experiences and life roles.

Thu, 07/20/2017 - 15:12