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Direct payments

Money matters: a system fraught with glaring inequality

In the second of two articles, Barbara Pointon analyses the chaos of funding and benefits that rarely seem to help the people they are intended for, and asks again, ‘Whose service is it?’

Thu, 07/20/2017 - 15:14

Early onset dementia: living at home with nursing support

In this video we meet Jim and Janet Swift, both keen travellers until Janet was diagnosed with dementia at the age of 58. Jim's account of their experience illustrates the widespread effect of a very rapid deterioration, and explores the sense of loss and loneliness that can be part of the caring role. His account also highlights the need for skilled, experienced support for carers – in this case provided by an Admiral Nurse - together with access to regular breaks from the caring role.

Thu, 07/20/2017 - 15:12

Giving carers the right to claim support

Looks at a government backed private member's bill which is seeking to extend the rights of carers.

Thu, 07/20/2017 - 15:12

Paying third parties

Investigates the legal and practical issues surrounding the proposals to allow carers of people with severe dementia or profound learning difficulties to access 'indirect payments' through and expansion of the direct payments scheme. This would allow individuals who might not be able to access payments themselves to benefit from the flexibility and choice of direct payments.

Thu, 07/20/2017 - 15:12

Direct payments: the information deficit

Direct payments can now be made to older people. But a 12-month research project has revealed that service users, carers and junior staff still have little knowledge of them. The authors of the Shield research team, Anglia Polytechnic University, and Tower Hamlets Coalition of Disabled People explain that service users are cautiously optimistic about what direct payments offer them but are anxious about the practicalities.

Thu, 07/20/2017 - 15:11

Supporting carers: the carer

This film focuses on Rose Fernandes who cares for her mother, who has dementia, and her daughter, who is autistic and has learning difficulties. She uses direct payments to pay for people to help with her daughter’s care, but for her mother she relies on agency staff. She finds this method tough as the agency staff only come at certain times, leaving her to care for her mum alone throughout the night. Meanwhile, her daughter Crystal receives much more flexible care, but direct payments leave her with a lot of paperwork to do. Note: This film is no longer available.

Thu, 07/20/2017 - 15:10

Extending direct payments to informal carers: some issues for local authorities

The Carers and Disabled Children Act (2000) has the potential to fundamentally change carers services and the way they are currently delivered. As yet, there is little published work that considers the implications of this Act either for local authorities or informal carers themselves. This paper examines the practical issues involved in the implementation of the Act in terms of: providing equitable services, defining terms, young carers and care package limits, local authority eligibility criteria and whether funding is adequate.

Thu, 07/20/2017 - 15:10

Carers' rights

Independent assessment and access to direct payments are among the new rights accorded to carers under the Carers and Disabled Children Act 2000.

Thu, 07/20/2017 - 15:10

Extending direct payments to people who lack capacity

One year after people who lack mental capacity were given the right to use direct payments, Mithran Samuel finds take-up is disappointing. [Introduction]

Thu, 07/20/2017 - 15:10

Choice or chore? Carers' experiences of direct payments

Report using carers' experiences to assess the effectiveness and value of the direct payments system and make recommendations for improvements.

Thu, 07/20/2017 - 15:10