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Involving NHS users and carers in healthcare education

This paper is based on a presentation delivered by the Special Interest Group for Education and Training (SIGET) at the annual Community Practitioners' and Health Visitors' Association (CPHVA) conference. Service user and carer involvement in all aspects of health care delivery, including the educational process, is a key element of the government's modernisation programme. This paper considers the policy context that requires nurse educationalists to seek the views of service users and carers in planning quality healthcare education programmes.

Thu, 07/20/2017 - 15:15

Managing the body work of home care

Body work is a key element of home healthcare. Recent restructuring of health and social care services means the home is increasingly a key site of long-term care. While there is a growing literature on the social dynamics between care recipients and their family caregivers, less is known about the formal work dynamic between paid care workers and care recipients and family caregivers.

Thu, 07/20/2017 - 15:15

Dementia risk reduction: it's never too early, it's never too late

There are 850,000 people living with dementia in the United Kingdom today, and there is currently no diseasemodifying intervention available for any form of the condition. Costs from dementia to the UK economy are currently estimated to be over L24 billion a year and approximately 700,000 people are informal carers for people who have dementia. While age is the biggest risk factor for developing dementia, the condition is not an inevitable part of ageing. Other factors such as medical history, lifestyle and genetics may also contribute to the risk of developing dementia.

Thu, 07/20/2017 - 15:14

Dementia management in France: health care and support services in the community

In France, a wide range of care and support services exist for community dwelling people with Alzheimer's disease (AD). These are coordinated by the general practitioner (GP). We investigated interventions that were ‘prescribed’ by French GPs and analysed their perceived barriers to arranging these. Thirty-nine percent of GPs responded to a postal survey, which was sent to 1105 physicians belonging to the Sentinel GP Research Network and to 524 GPs consulting in the Rhône-Alpes region of France.

Thu, 07/20/2017 - 15:14

Which carers of family members at the end of life need more support from health services and why?

With end of life care a national priority in many countries, and the main place of care the family home, informal family carers are now considered the frontline of primary care. Yet we are insufficiently informed about the needs of carers, both during the time of caring and during bereavement. This study identifies which carers believed they did not get enough support from health services when caring for a terminally ill family member, what factors influenced perceptions of support, and whether inadequate support influenced the carer's health following the death of a family member.

Thu, 07/20/2017 - 15:13

The experiences and needs of young adult carers in the UK

The UK’s 290,000 young carers aged 16 to 24 often fall into the gap between adults’ and children’s services. Researcher Alison Petch reports

Thu, 07/20/2017 - 15:13

Better safety, better quality of life

Reports on the launch of ASTRID ( A Social and Technological Response to meeting the needs of Individuals with Dementia and their Carers) a European project funded under the Telematics Programme, involving the UK, Norway, Netherlands and Ireland. It aims to research and promote the use of assistive technology, a broad term which covers anything from simple devices for individuals to whole systems of adapting housing.

Thu, 07/20/2017 - 15:13

Family caregivers in the USA

Looks at the situation of family carers in the USA. Discusses how the USA has been slower to recognise the contribution of family carers than in the UK and how they face a more uncoordinated environment.

Thu, 07/20/2017 - 15:13

'Making the move': relatives' experiences of the transition to a care home

Despite a growing awareness of the significance of helping a relative to relocate to a care home as a key phase in the caregiving career, relatively few studies in the UK have explored this experience in depth. The research on which the present paper is based sought to better understand experiences of nursing home placement from the viewpoint of relatives. The study was informed by a constructivist perspective. Data were collected in 37 semi-structured interviews involving 48 people who had assisted a close relative to move into a nursing home.

Thu, 07/20/2017 - 15:13

From independence to interdependence: integration means 'think family'

This article reviews current policies and their impact on carers' lives, and highlights the potential limitations of a more personalised approach to care. Using some key research findings and illustrative case studies, the article argues that we should build on the achievements of the personalisation reforms, but not limit our ambition to offering individuals more choice and control over their services. Instead, there should be a focus on individuals achieving ordinary life chances and families achieving emotional and financial sustainability.

Thu, 07/20/2017 - 15:13