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End of life care: why supporting family carers is vital

This film looks at the family support service for the families and carers of people who are at the end of their lives at Leicestershire and Rutland Hospice. Social workers work with other staff members to identify families who are in need of support.

Thu, 07/20/2017 - 15:21

Family lifeline

Hospice nurses are finding new ways to care for bereaved people, reports Jennifer Trueland

Bereavement care is a vital but under-funded part of palliative care services, and there is growing evidence that people who have lost a loved one are at increased risk of serious illness. The Hospice of St Francis in Berkhamsted is providing innovative care for families of patients before and after death. ‘Life-changing’ initiatives include cookery classes and pony rides.

Thu, 07/20/2017 - 15:21

Transitions at the end of life for older adults: patient, carer and professional perspectives : a mixed-methods study

Background: The end of life may be a time of high service utilisation for older adults. Transitions between care settings occur frequently, but may produce little improvement in symptom control or quality of life for patients. Ensuring that patients experience co-ordinated care, and moves occur because of individual needs rather than system imperatives, is crucial to patients’ well-being and to containing health-care costs.

Thu, 07/20/2017 - 15:15

The hospice caregiver support project: providing support to reduce caregiver stress

Introduction: The vast majority (80%) of care provided to hospice patients is given by informal and unpaid caregivers, who are often family members. They may be responsible for everything from management of the household and finances to medical and personal care. Providing this kind of care to a loved one at the end of life can contribute to increased stress, health problems, and decreased quality of life.

Thu, 07/20/2017 - 15:13

Exploring the collective hospice caregiving experience

Background: Collective caregiving, performed by caregivers working in pairs (informal primary and secondary caregivers working together), is common in the hospice setting. Research suggests that caregiving pairs may experience different caregiver outcomes. However, little is known about how caregiving pairs differ from solo caregivers (informal primary caregivers) on outcome measures.

Thu, 07/20/2017 - 15:11

Preference for place of care and place of death in palliative care: are these different questions?

Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised control trial were used. Patients and caregivers were separately asked by the palliative care nurse their preference at that time for place of care and place of death.

Thu, 07/20/2017 - 15:10