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Information needs

A synthesis of knowledge about caregiver decision making finds gaps in support for those who care for aging loved ones

We conducted a mixed-methods knowledge synthesis to assess the effectiveness of interventions to improve caregivers' involvement in decision making with seniors, and to describe caregivers' experiences of decision making in the absence of interventions. We analyzed forty-nine qualitative, fourteen quantitative, and three mixed-methods studies. The qualitative studies indicated that caregivers had unmet needs for information, discussions of values and needs, and decision support, which led to negative sentiments after decision making.

Thu, 07/20/2017 - 15:10

A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer

Aims.  This paper presents the results of a systematic review examining the practical information needs of informal caregivers providing home-based palliative and end-of-life care to people with advanced cancer.

Thu, 07/20/2017 - 15:09

Understanding the information behaviours of carers of people with dementia: a critical review of models from information science

Objectives: The aim of this review is to discuss how existing models of information behaviour may help to improve provision of information to carers of people with dementia. The article analyses existing models of information behaviour derived from information science, describes studies that have examined these models in relation to health and discusses ways in which they help to understand the information behaviours of carers of people with dementia.

Thu, 07/20/2017 - 15:09

Life with Parkinson's today - room for improvement: results of the UK's largest ever survey of people with Parkinson's and carers

Results of the UK’s largest ever survey of people with Parkinson’s and carers

Thu, 07/20/2017 - 15:09

Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review

Objectives: To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. Data sources: Seven electronic databases were searched for the period January 1994–November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metalib®). Key journals and reference lists of selected papers were hand searched. Review methods: Included studies were peer-reviewed journal articles presenting original research.

Thu, 07/20/2017 - 15:09

Conducting a study to improve information exchange and develop communication strategies for informal carers of palliative care patients (and patients without carers): a team approach

The purpose of this paper is to report on research in progress. The research is being undertaken by the Sacred Heart Palliative Care Community Service (SHPCCS) multidisciplinary team on information and communication issues for carers of palliative care patients and patients without carers. The aim of the study is to explore the information needs of informal carers and patients without carers. A mixed methods, mixed methodology within a case study design has been use to conduct the study and the progress thus far has highlighted a number of challenges for the team.

Thu, 07/20/2017 - 15:09

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