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Meaning from methods: re-presenting narratives of an HIV-affected caregiver

This article outlines the methodological process followed in examining a portion of an interview in which an older woman tells of two incidents where she felt effects of associative HIV-related stigma. Through the process of applying different techniques of narrative analysis, the author learned research methods and deepened interpretations of the text. Data management techniques both reflect assumptions and augment understanding. In narrative analysis, the structural whole can best be understood by first examining the architectural detail.

Thu, 07/20/2017 - 15:18

Across the divide

This article focuses on the urgent need to develop social work practice, specifically to systemise the learning which is available from professional interventions with service users and carers. It outlines the value of the task-centred model and method as described in 'The Task-Centred Book' which articulates the experiences of practitioners and service users in a systematic way.

Thu, 07/20/2017 - 15:17

What constitutes health-related quality of life in dementia? Development of a conceptual framework for people with dementia and their carers

Background: The evaluation of multi-dimensional outcomes such as health-related quality of life (HRQL) is particularly relevant in dementia where the disease can compromise all areas of functioning. The nature of dementia can make self-report difficult, yet the subjective nature of HRQL makes the value of proxy reports limited. Previous work suggests that there are domains of HRQL that are unique to dementia.

Thu, 07/20/2017 - 15:16

Using strengths-based practice to support culture change: an Australian experience

Workplaces across the globe have experienced an unprecedented pace of change. The effects of a problem focus, de-personalisation and over regulation in long-term care settings are experienced similarly by carers, residents, their families and nursing homes as a whole. A pathology focus is no longer appropriate, inviting a paradigm shift to explore how accessing the unique strengths and resources of all parties becomes an imperative role in changing organizational culture. This paper draws comparisons between the experiences and tasks of all those involved in care settings.

Thu, 07/20/2017 - 15:15

The use of long-term care services by the Dutch elderly

The main focus of this paper is the development of an appropriate framework to characterize the process of long-term care utilization by the Dutch elderly. Three broad categories of care services are considered, namely, informal care, formal care at home, and institutional care. The use of these care alternatives is modelled jointly, and stochastic dependence is allowed between the various care options. Special attention is given to the concept of health status and to the potential endogeneity of this variable in the model.

Thu, 07/20/2017 - 15:13

An investigation of models of illness in carers of schizophrenia patients using the Illness Perception Questionnaire

BACKGROUND: Although carers' reactions to schizophrenic illness in a close family member may have important implications for the patient and for themselves, little is known of factors that influence the way carers respond. In the area of physical health problems, people's models of their illness or illness representations have been found to be related to the ways they react and cope with their illness. This study examines the use of a modified form of the Illness Perception Questionnaire (IPQ) to investigate illness models in a sample of carers of schizophrenia patients.

Thu, 07/20/2017 - 15:13

Relying on informal care in the new century? Informal care for elderly people in England to 2031

The research reported here is concerned with the future of informal care over the next thirty years and the effect of changes in informal care on demand for formal services. The research draws on a PSSRU computer simulation model which has produced projections to 2031 for long-term care for England. The latest Government Actuary's Department (GAD) 1996-based marital status projections are used here. These projections yield unexpected results in that they indicate that more elderly people are likely to receive informal care than previously projected.

Thu, 07/20/2017 - 15:12

Quality of life in dementia in perspective: An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature

Many different definitions of the concept of quality of life (QOL) are found in the literature. This raises the question as to which domains are viewed as really important by people with dementia and which are possibly based on views of others, such as (in)formal carers, or theoretical models. An explorative study was carried out among people with dementia living in the community and in nursing homes. Their opinions were compared to those of professional carers and to the current theoretical models and instruments for QOL in dementia.

Thu, 07/20/2017 - 15:10

Understanding the information behaviours of carers of people with dementia: a critical review of models from information science

Objectives: The aim of this review is to discuss how existing models of information behaviour may help to improve provision of information to carers of people with dementia. The article analyses existing models of information behaviour derived from information science, describes studies that have examined these models in relation to health and discusses ways in which they help to understand the information behaviours of carers of people with dementia.

Thu, 07/20/2017 - 15:09

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