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Carers of older relatives in long term care: support needs and services

Reports on a study which aimed to explore the roles and support needs of carers whose relative is placed in long-term care; identify the range and types of services available; and explore was to support carers more effectively. It draws on evidence from a pilot study conducted in 2002/03 in one area of South East England, and a supplemental literature review.

Thu, 07/20/2017 - 15:13

Standardised measures of needs, stigma and informal care in schizophrenia using a bottom-up, cross-cultural approach

Background There is a lack of instruments to measure the needs, stigma and informal care of people with schizophrenia that take account of sociocultural variation and patients' and formal and informal carers' opinions and experiences. Aims To develop questionnaires to measure stigma, needs and informal (non-professional) care for people with schizophrenia. Method We undertook the study in seven countries and in English, Spanish and Portuguese.

Thu, 07/20/2017 - 15:13

“It’s us that have to deal with it seven days a week”: carers and borderline personality disorder

Carers provide unpaid support to family or friends with physical or mental health problems. This support may be within the domain of activities of daily living, such as personal care, or providing additional emotional support. While research has explored the carer experience within the National Health Service in the United Kingdom, it has not focused specifically on carers of individuals with a diagnosis of borderline personality disorder (BPD). Eight carers for those with a diagnosis of BPD were invited to take part in two focus groups.

Thu, 07/20/2017 - 15:13

Population assessment toolkit

An interactive toolkit, developed to support the implementation of the Social Services and Wellbeing (Wales) Act, which provides information and advice to support Local Authorities and Health Boards to undertake an assessment of care and support needs and carers' needs in their local area. The toolkit is in three main sections. Section one (the ‘What’ guide) looks at what is required under the Social Services and Wellbeing (Wales) Act, the benefits of carrying out an assessment, analysing the data, and what should be included in the report.

Thu, 07/20/2017 - 15:12

“How can I take a break?” coping strategies and support needs of mental health carers

Caring for a family member or friend can have major impacts on the personal life and wellbeing of carers. Identifying those who experience poor subjective wellbeing, factors that contribute to this, and ways in which services can be more effectively provided is essential in supporting carers in their role. This study surveyed carers from across New South Wales and found that carers of people with mental health issues reported poorer health and mental health themselves than any other group of carers, despite being more likely to access supportive services.

Thu, 07/20/2017 - 15:12

Rescue me

People caring for someone with a mental illness finally have a right both to an assessment and to have their assessed needs met. The author explains how much difference this will make to carers and their loved ones.

Thu, 07/20/2017 - 15:12

Correlates of stress in carers

BACKGROUND: Mental health services are required to take account of the needs of carers, yet little is known about how services affect carers.

AIMS: This paper explores the relationship between the user's mental health problems, the services received and the impact of caring on carers.

METHODS: Sixty-four carers were interviewed, measuring their experiences of care-giving, carer stress and the service user's level of impairment. A robust, composite measure of user severity was derived.

Thu, 07/20/2017 - 15:12

Breaking point: a report on caring without a break for children and adults with severe or profound learning disabilities

Mencap’s 2003 Breaking Point report identified the appalling situation faced by the majority of families caring for children and adults with severe and profound learning disabilities. Despite highlighting the issues with central and local government at every opportunity, Mencap continues to meet families pushed to breaking point. We have revisited the issues in this report, as we have come across many more stories of families who are still not getting the short break they need. We can confirm that, sadly, nothing has really changed.

Thu, 07/20/2017 - 15:12

In their own right: translating the policy of carer assessment into practice

Successive legislation has underscored the importance of assessments that are sensitive to the needs of carers and take into account their ability and willingness to continue caring. This paper synthesizes qualitative and quantitative findings from a continuing programme of carer-related research that began in 1993 and has continued in parallel with legislative changes. It considers the process and characteristics of carer assessment from the perspectives of carers for individuals with a range of health and social care needs, and practitioners.

Thu, 07/20/2017 - 15:12

Giving carers the right to claim support

Looks at a government backed private member's bill which is seeking to extend the rights of carers.

Thu, 07/20/2017 - 15:12

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