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Physical disabilities

Enabling future care

Little attention has been paid to the immense struggles facing disabled people and their caregivers as they try to plan their long-term futures. This book sets out practical ways to maximise future care options for such community care user groups. It focuses on the priorities of older caregivers and people with learning disabilities to give numerous suggestions for increasing control people have over their affairs and links these to central legislation and entitlement issues.

Thu, 07/20/2017 - 15:24

Services, but at a price

The Carers and Disabled Children’s Act 2000 promises carers flexibility. But flexibility comes at a cost - local authorities will be charging for carers’ services, writes Gideon Burrows.

Thu, 07/20/2017 - 15:24

Parents caring for adult children with physical disabilities: the impact of hope and closeness on caregiving benefits

In the present study, we examined 82 parents of adult children with physical disabilities. The parents described the benefits of caregiving, and reported positive feelings about their involvement in caregiving as well as a sense of personal growth as a result of caregiving. When parents perceived caregiving as causing less emotional strain (subjective burden), and when they felt higher levels of closeness with their offspring, and expressed higher levels of hope, they were more likely to indicate that caregiving yielded benefits.

Thu, 07/20/2017 - 15:24

Making headway

There are few services provided for people with brain injuries with the result that too much pressure is placed on their carers. Talks to a social worker about the difficulties she had in obtaining support for her client and his carer.

Thu, 07/20/2017 - 15:23

It's time to accept help

A panel of practitioners give their opinions on the case of a young disabled women who is being looked after at home by her elderly parents. The case highlights the importance of providing support to carers.

Thu, 07/20/2017 - 15:23

Disability, participation and welfare to work in Staffordshire

Staffordshire's Welfare to Work Joint Investment Plan is an inter‐agency approach to improving job opportunities for disabled people and carers, emphasising the need for their participation in this process. A partnership with Staffordshire University has enabled disabled people to acquire research skills and survey the views of other disabled people on barriers to employment and strategies to overcome them. The article shares this innovative approach to participation and welfare to work.

Thu, 07/20/2017 - 15:22

The demographic characteristics and economic activity patterns of carers over 50: evidence from the English Longitudinal Study of Ageing

Studies on informal care provision have often focused on the provision of care for persons with a long term physical or mental ill-health or disability, or problems related to old age. However, the provision of care and support more broadly, for example in the form of childcare for grandchildren, can also impact on various aspects of a carer's life, such as their employment (if under the state retirement age), lifetime earnings and, by extension, pension income in later life.

Thu, 07/20/2017 - 15:22

Carers

A new initiative to support carers in the United States mirrors the national carers strategy in the UK. But there are important differences, such as the role of insurance in the provision of long term care. Looks at some recent research studies, in particular a study to understand how long-term care insurance for disabled older people can affect the lives of their working care givers.

Thu, 07/20/2017 - 15:21

Service use and needs of people with motor neurone disease and their carers in Scotland

A national study of patients with motor neurone disease (MND) and their carers was conducted in Scotland in late 1996. A questionnaire covering areas such as: use of medical, social and voluntary services; use of or waiting for specialised equipment; satisfaction with provided services; and standard demographic data was used in face-to-face interviews conducted by the four Scottish Motor Neurone Disease Association care advisers. The care advisers also assessed the respondent’s level of impairment, using a standard instrument: the Amyotrophic Lateral Sclerosis Severity Scale (ALSSS).

Thu, 07/20/2017 - 15:19

Assessing the outcomes of equipment and adaptations: issues and approaches

Current government policy emphasises professional accountability, Best Value, evidence-based practice and outcomes for users and carers. In this context, being able to demonstrate the effectiveness of routine practice is increasingly important. This article considers the key issues in collecting information about the outcomes of equipment and adaptations. These include: the assessment of the full range of outcomes; the timing of data collection; the use of standardised and individualised measures; and linking outcomes to interventions.

Thu, 07/20/2017 - 15:17

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