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Caregiver perceptions in caring for post-stroke patients in Palopo City, South Sulawesi

The general aim of this study is to identify the events experienced by the caregiver (the husband/wife) in providing care to the post-stroke partner in Palopo City, South Sulawesi. This study is qualitative research using phenomenology design. Qualitative study is conducted to find out certain reasons on a topic or to understand the occurrence of a topic. The focus of the phenomenological approach is on the essence or event experienced by the participants.

Mon, 11/23/2020 - 12:20

Rare health condition 27: Mayer-Rokitansky-Küster-Hauser syndrome; and the role of informal caregivers

The purpose of this series is to highlight a range of rare health conditions. Rare health conditions are those that affect no more and usually less than 1 person in every 2000 and many HCAs and nurses will encounter some of these conditions, given the high number of them. This 27th article will explore one of these conditions—Mayer-Rokitansky-KüsterHauser syndrome—and the role and support needs of the ‘informal’ family caregiver.

Mon, 02/03/2020 - 10:36

Helping lay carers of people with advanced cancer and their GPs to talk: an exploration of Australian users' views of a simple carer health checklist

The lay caregiving role is integral to advanced cancer care but places carers' health at risk. A supportive General Practitioner (GP) can help primary lay carers manage their health, if they disclose their concerns. A Needs Assessment Tool for Caregivers (NAT-C) was developed for carers to self-complete and use as the basis of a GP consultation, then tested in a randomised controlled trial. This paper reports a qualitative research study to determine the usefulness and acceptability of the NAT-C in the Australian primary care setting.

Mon, 03/25/2019 - 10:33

Effects of stroke on informal carers

Informal carers have a pivotal role in caring for patients who have had a stroke. Research has shown that informal carers have unmet information, psychological and social needs. There is a lack of research about how informal carers in Northern Ireland manage the role of caring for a patient who has experienced stroke, and what kind of support they need and receive. This literature review explores the experiences of informal carers providing stroke care in the home.

Thu, 07/20/2017 - 15:22

The role of district nursing: perspectives of cancer patients and their carers before and after hospital discharge

The role of the district nurse (DN) is difficult to define. Knowledge about the perspectives of patients with cancer, and their informal carers, on the roles of DNs and community services is lacking. The aim of this study is to identify the roles of DNs and community services as perceived by patients with cancer and their carers before and after hospital discharge. Seventy-one pre- and post-discharge conversational interviews were conducted with cancer patients and carers, and analysed thematically.

Thu, 07/20/2017 - 15:19

When Harry met Barry, and other stories: a partner's influence on relationships in back pain care

This study forms part of a longitudinal investigation of pain, disability and health care use in primary care low back pain consulters. Sixteen purposively sampled patients and their health care professionals were interviewed about experiences with back pain and their therapeutic relationships. This case study draws on the accounts of one patient, his wife, and three health care professionals and explores the role of the informal carer in back pain care. The interview with the patient and his wife highlights the dynamics of a co-constructed narrative of back pain.

Thu, 07/20/2017 - 15:17

Young carers as social actors: coping strategies of children caring for ailing or ageing guardians in Western Kenya

There is a vast body of research on the impact of HIV/AIDS on children, but little which acknowledges the role of children in providing care and support for ailing parents or ageing guardians. There has been a tendency to downplay the active role and agency of young carers, with young carers often represented as victims of damaging circumstances that compromise their psychosocial well-being.

Thu, 07/20/2017 - 15:15

The COPE index -- a first stage assessment of negative impact, positive value and quality of support of caregiving in informal carers of older people

Data was collected in five countries from informal carers of older people ( n = 577) via a common protocol. Carers completed: (1) a 17-item version of the Carers of Older People in Europe (COPE) Index, an assessment of carers' perceptions of their role : (2) a questionnaire on demographic and caregiving circumstances : and (3) three instruments included for the criterion validation of the COPE Index (the General Health Questionnaire, the Hospital Anxiety and Depression Scale, and the World Health Organization Quality of Life-BREF).

Thu, 07/20/2017 - 15:15

A reflection on the application of grounded theory in the exploration of the experiences of informal carers

The aim of this paper is to reflect on the application of a qualitative research method that presents novice researchers with a variety of challenges. It is suggested that prospective users of the grounded theory method should seek guidance from experts in the field. However, to find these experts has proved to be quite challenging. The research topic lends itself to a qualitative study in general using the grounded theory method in particular. 

Thu, 07/20/2017 - 15:12

Carers in the community: the nature, extent and needs of informal care provision within the Western Health Board

Many individuals provide care for people who would otherwise require core from health professionals. The need for 'informal carers' to support health services is likely to increase due to changing socio-demographic trends. However, little is known about the nature and extent of informal core and the needs of carers and those receiving care.

Thu, 07/20/2017 - 15:10

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