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Social exclusion

Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness

Social exclusion has a negative impact on quality of life. People living with dementia or mental health disorders as well as informal carers have been separately described as socially excluded. The objective of this systematic narrative review was to examine the extent to which social exclusion experienced by adult informal carers of people living with dementia or severe mental health disorders has been identified and described in research literature. It synthesised qualitative and quantitative evidence and included the perspectives of carers themselves and of professionals.

Thu, 01/31/2019 - 13:12

Aging in Place in Every Community: Social Exclusion Experiences of Parents of Adult children With Autism Spectrum Disorder

This article offers an examination of aging processes of lifelong caregivers and the possibilities for social exclusion place experienced by parents of adult children with autism spectrum disorder (ASD). This study of parental caregivers (n = 51) sheds light on how enduring caregiving roles can lead to social exclusion in three ways: misunderstanding of ASD and stigma, the complexity of the caregiving roles, and impact on daily routines including challenges with long-term planning for both the adult children and the parental caregivers.

Wed, 10/31/2018 - 14:32

Half a million voices: improving support for BAME carers

There are 500,000 Black Asian Minority Ethnic (BAME) carers in England. This report shows that BAME carers provide more care than average. They face additional difficulties as they care, struggling with language barriers, accessing culturally appropriate services and with stereotyping around caring. This puts them at greater risk of ill health, poverty, loss of employment and social exclusion. The report analyses existing provisions and sets clear recommendations for local authorities, health and well being boards, primary care trusts and GP consortia to improve services.

Thu, 07/20/2017 - 15:23

Gender, poverty and social exclusion

Throughout the 20th century women were more vulnerable to poverty than men which continues into the 21st century. These gender differences are explored in a chapter on gender, poverty and social exclusion in a volume giving the results of the millennium Poverty and Social Exclusion (PSE) Survey. Social exclusion exists where one or more of the social sub-systems is not functioning adequately - the economic, social and family and community systems.

Thu, 07/20/2017 - 15:18

Youth South Asians with learning disabilities: still socially excluded?

This paper report on a study undertaken in Glasgow of young South Asian people with learning disabilities and their carers, and explores the extent to which they are socially excluded. Although there is an increasing political emphasis on the inclusion of people with learning disabilities, the families concerned continue to experience isolation, both socially and in terms of service provision. Access to service is often problematic, because of linguistic and cultural barriers and families appear to be reluctant to use day centres.

Thu, 07/20/2017 - 15:14

Cultural competency: professional action and South Asian carers

Inequality and exclusion are characteristic of the experience of UK South Asian communities. In health care, community needs are often not addressed by health and social welfare services. An increase in cultural competency is now part of identified policy. The aim of this paper is to examine the extent to which there is evidence of cultural competency amongst professionals concerning South Asian parents caring for a person with cerebral palsy. Semi‐structured interviews were conducted with respondents from 19 service organisations.

Thu, 07/20/2017 - 15:14

Carers and indicators of vulnerability to social exclusion

Discusses the concept of social exclusion in relation to carers and asks why it has taken so long to link carers with the social exclusion agenda.

Thu, 07/20/2017 - 15:14

Caring on the breadline: the financial implications of caring: executive summary

This report presents findings of a questionnaire-based survey of the financial position of carers in the UK conducted by the Carers National Association (CNA), the starting point of which was that government carers strategies published recently for England and Scotland have omitted to address carers' financial problems. The survey suggested that a large proportion of carers providing substantial care are faced with financial hardship.

Thu, 07/20/2017 - 15:14

Paying the price: carers, poverty and social exclusion

There are approximately six million people in the UK who provide care and support for someone, usually a relative or partner, who, because of age, health or disability, are unable to cope alone. Although this form of unpaid care work saves the taxpayer an estimated £34 billion a year in health and social services, the carers themselves are often left in poverty, excluded from any active social life and often without paid employment. This publication draws on recent research that looks at the way caring impacts on the lives of different types of carers.

Thu, 07/20/2017 - 15:14

Up close and personal: a qualitative study exploring the lived experience of older carers

This study explored the experiences of informal carers who were aged 65 years and over. It has been estimated that 15 per cent of those aged 65 or over provide some form of informal care in England. Despite a growing literature on the involvement of older people in research, there is a paucity of literature on the involvement of older carers. In this study, older carers were identified via a General Practice (GP) register in one urban medical practice. Data was collected through a series of focus groups, which were transcribed and analysed using thematic analysis.

Thu, 07/20/2017 - 15:13

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