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Support groups

Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers

The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer.

Thu, 07/20/2017 - 15:22

Group support during caring and post-caring: the role of carers groups

This article discusses the findings about the role of face-to-face carers groups which emerged from a qualitative, interpretive study of 37 former carers' experiences in the UK. The study was informed by grounded theory and semi-structured in-depth interviews were used as the main method of data collection. The advantages and disadvantages of carers groups during caring and post-caring that were identified are presented.

Thu, 07/20/2017 - 15:21

A participatory action research project evaluating a carers' representation group : Carers Against Stigma

I describe the development of a group in North London that aimed to increase the involvement of carers in the development and monitoring of mental health services across the borough. I enabled the carers to evaluate their experiences of the group using a participatory action research model. The evaluation was divided into two phases. Phase 1 focused on how the carers developed effective processes to facilitate the individuals in the group to represent not only their experiences but those of the collective.

Thu, 07/20/2017 - 15:20

Participants' experiences of hospital-based peer support groups for stroke patients and carers

Purpose: The aim was to examine stroke patients’, carers’ and volunteer supporters’ experiences of peer support groups during hospital rehabilitation. Methods: Semi-structured interviews and questionnaires were analysed by inductive thematic analysis. Participants also answered a standardised Therapeutic Factors Inventory (TFI). Results: Five superordinate themes emerged for patients, carers and volunteer supporters.

Thu, 07/20/2017 - 15:20

Caring for the carers

Estimates suggest there are 5.7 million carers in the UK, carrying out unpaid work valued at a massive 34 billion. The role is undefined and rarely chosen voluntarily. The carers and Disabled Children Act, which came into force in April 2001, gives carer the right to an assessment and local authorities the power to make payments and provide services direct to carers. The carers' Resource is an independent charitable company offering a direct point of contact for carers and professionals seeking information, advice, support, referral, representation and advocacy. 2 refs. [Summary]

Thu, 07/20/2017 - 15:18

Use of Alzheimer family support group by community-residing caregivers

This paper describes the author’s experience as a new co-facilitator for an Alzheimer’s Disease Family Support Group and reviews the preliminary phase of group practice and the dynamics of the beginning phase of co-facilitating the Alzheimer’s Family Support Group.

Thu, 07/20/2017 - 15:16

An experimental study on the effectiveness of a mutual support group for family caregivers of a relative with dementia in mainland China

When caring for an older relative with dementia, family members experience considerable distress and burden. Literature reviews show that supportive group interventions for these caregivers have significant positive effects on improving their distress and quality of life, but not consistent and conclusive. Limited research is found in Asian populations. This study tested the effectiveness of a 12-session bi-weekly mutual support group program for Chinese family caregivers of a relative with dementia in Hong Kong, when compared with standard family support service.

Thu, 07/20/2017 - 15:16

Caring for carers: how community nurses can support carers of people with cancer

There are more than 1 million people in the UK looking after a family member or friend with cancer, but half the number of these carers do not receive support to care. Providing this care significantly affects cancer carers emotionally, physically, and financially. Community and district nurses have a vital role to play in reaching out to these hidden carers and signposting them to the correct support. This article provides tips on identifying carers, including who they are, the challenges they face, and how health professionals can approach and speak to them.

Thu, 07/20/2017 - 15:16

Dementia care: involving people in Alzheimer’s cafes

An Alzheimer’s Café is a monthly social gathering in a friendly café-like atmosphere where anyone interested in dementia, especially people with dementia and their carers, can meet. In addition to offering a social outing, this group intervention also provides a structured programme of education and information about dementing illnesses and various types of support. This article explains how Alzheimer’s Cafés are hosted, and how care home staff are involved in them. Alzheimer’s Cafés follow a set routine and are structured around an annual programme of themed topics.

Thu, 07/20/2017 - 15:15

A long-term support group for people with dementia

This article reports the evaluation of a 24-week support group for people with recently diagnosed dementia.  The group was evaluated in four ways: transcript analysis of group sessions, interviews with participants and carers about the group at 8 and 20 weeks from the start of the group, rating of the importance of eight therapeutic factors by participants, carers and group leaders, mood scales completed by participants and their carers before the group and at 8 and 20 weeks after it started.  The evaluation suggests that as the group progressed, participants became more positive about usin

Thu, 07/20/2017 - 15:15