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Survey research

Towards a culturally acceptable end-of-life survey questionnaire: a Bengali translation of VOICES

Aim To assess the cultural acceptability and appropriateness of an English end-of-life survey questionnaire translated into Bengali for use in east London.

Study design Group discussions with informal carers (n=3 groups) and professionals (n=1 group).

Thu, 07/20/2017 - 15:24

Do different stakeholder groups share mental health research priorities? A four-arm Delphi study

BACKGROUND: Despite considerable investment in research priority setting within diverse fields of healthcare, little is known about the extent to which different stakeholder groups share research priorities. Conflicting priorities may jeopardize stakeholder engagement in research.

OBJECTIVE: To identify the research priorities of different stakeholder groups within mental health care and examine the extent and nature of agreement between them.

Thu, 07/20/2017 - 15:22

Informal care and support for carers in Sweden: patterns of service receipt among informal caregivers and care recipients

This study describes and analyses the kinds of support received by different categories of informal carers, and the kinds of help that care recipients receive in addition to that provided by various categories of carers. Data were collected in a Swedish county in 2000, by means of telephone interviews. The net sample consisted of 2,697 individuals 18–84 years old, and the response rate was 61%. The results showed that relatively few carers in any care category received any kind of support aimed directly at them as carers.

Thu, 07/20/2017 - 15:20

Assessing multiple sclerosis patients' and carers' views of respite care

Background: People with multiple sclerosis (MS) often require full-time care, which may be provided by informal carers. Respite becomes a vital part of carers' lives allowing temporary relief. Little attention in the literature is given to the people who experience respite care. Aim: The aim of this study was to assess the views of respite care by MS patients and their carers. Method: A cross sectional survey was conducted in Northern Ireland, one questionnaire for patients and another for carers.

Thu, 07/20/2017 - 15:12

A survey of policy and practice on expenses and other payments to mental health service users and carers participating in service development

This paper reports a survey of 75 organisations commissioning and providing secondary mental health services regarding their policies and practice in respect of payment to mental health services users and informal carers for expenses and their time when participating in the design, development, delivery and monitoring of services. A wide range of statutory and non-statutory organisations was invited to participate.

Thu, 07/20/2017 - 15:11

Carers in the community: the nature, extent and needs of informal care provision within the Western Health Board

Many individuals provide care for people who would otherwise require core from health professionals. The need for 'informal carers' to support health services is likely to increase due to changing socio-demographic trends. However, little is known about the nature and extent of informal core and the needs of carers and those receiving care.

Thu, 07/20/2017 - 15:10