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Carers at breaking point: Making the case for carers' breaks in England

This report shows the that majority of unpaid carers are unable to take sufficient breaks and also highlights an unfair and unequal provision of carers’ breaks services across England. The report is based on the results of a survey of over 1,000 carers in the UK and a freedom of information request to local authorities and clinical commissioning groups across England. Only 8 per cent of carers responding to the survey felt they had been able to take sufficient breaks.

Mon, 10/07/2019 - 14:27

Family caregiver use and value of support services in the VA Program of Comprehensive Assistance for Family Caregivers

Context: The US Congress in 2010 established the Program of Comprehensive Assistance for Family Caregivers (PCAFC) in the Department of Veterans Affairs’ (VA) healthcare system, expanding services for family caregivers of eligible veterans with injuries sustained or aggravated in the line of duty on or after 11 September 2001. The program includes a Caregiver Support Coordinator, stipends for caregivers, education/training, and additional services.

Sat, 05/04/2019 - 12:15

The carers' covenant

Based on the findings from research, this report makes recommendations provide better support for carers. The 12 policy recommendations cover five key themes of financial assistance, employment, identification and support, support networks and technology. Together, the policies together form a covenant for carers. The research looked at who informal carers are and the amount of care they provide, explored the experience of informal carers through two focus groups, and looked at the support available for carers internationally.

Tue, 04/16/2019 - 10:56

The tide is turning for carers

The authors explains how a growing UK-wide network, tide-together in dementia everyday, is ensuring that the expertise of carers influence dementia policy, research and practice. The network, created by carers for carers, does not provide direct support to services to people affected by dementia, so it's members are able to give completely impartial and independent feedback based soley on their lived experiences as carers. (Edited publisher abstract)

Wed, 04/10/2019 - 13:54

Palliative care services for people with dementia: a synthesis of the literature reporting the views and experiences of professionals and family carers

The experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts. This is a synthesis of the concerns and challenges for carers at the end of life. These accounts are often insightful and provide several views of carers’ and professionals’ experience. Having a close relationship as a carer gives a unique and poignant view. What emerges from this review is a range of perspectives that provide contrasting views of the heterogeneity of carers and professionals.

Thu, 07/20/2017 - 15:24

The experience of caring for older people with dementia in a rural area: using services

Reports on findings from the carer component of the Gwynedd Dementia Study. It is based on carer interviews, using quantitative and qualitative data. It describes the carers, their perceptions of their dependents' problems, the common challenges they face, their experiences of formal and informal support and, with reference to the literature, identifies implications for policy and practice. Levels of formal service inputs were low, but most of the carers appeared to receive the services they needed.

Thu, 07/20/2017 - 15:24

The future's bright, but only if we get it right now

The author, from the organisation Rethink, gives his personal views on the current state of the mental health services; what users and carers would like their experience of mental health services to be; and the key areas to tackle in order to improve services.

Thu, 07/20/2017 - 15:24

Life with two hats: part 1

Part 1 of a video by Viviana Fain-Binda for carers of people with dementia.  One carer talks about how she coped when her partner was diagnosed with dementia and how using a day care centre was able to support her.

Thu, 07/20/2017 - 15:24

A 10-year plan for quality living for people with disabilities and their carers

Background: The concerns of older carers of an adult with disabilities have been well documented. The sudden incapacity or death of the carer can result in a crisis response rather than a planned transition to a chosen sustainable alternative care arrangement for the person with disability. Building on previous ‘Futures Planning’ projects, the aim of this project was to enrich the lives of people with disabilities and their carers whilst ensuring that their wishes for the future are documented to provide security.

Thu, 07/20/2017 - 15:24

Combating stigma

Contributors to this DVD talk from personal experience about the social impacts of living with a mental illness, including stigma and discrimination. Content includes the experiences of two carers and two people who have had experience of mental health problems. In addition, Professor Graham Thornicroft talks about the recent research evidence in nine key areas. Additional clips of other people's experiences also add to the evidence in these nine areas.

Thu, 07/20/2017 - 15:23

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