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Mental capacity legislation in the UK: systematic review of the experiences of adults lacking capacity and their carers

AIMS AND METHOD: Capacity legislation in the UK allows substitute decision-making for adults lacking capacity. Research has explored the experiences of such adults and their carers in relation to the Adults with Incapacity (Scotland) Act 2000, and the Mental Capacity Act 2005 in England and Wales. A systematic review of the relevant research was performed using a framework method. RESULTS: The legislation provided mechanisms for substitute decision-making which were seen as useful, but there were negative experiences.

Wed, 05/15/2019 - 10:29

Commissioning care services for older people in England : the view from care managers, users and carers

One of the key objectives of the community care reforms of 1990 in the United Kingdom was the development of a flourishing independent sector alongside good quality public services. The aims of the reforms were to increase the available range of options, widen consumer choice and promote independence. The purpose of the study reported here was to examine – from the perspective of older service users, their carers and care managers – experiences at the operational level of arranging, delivering and receiving care services.

Thu, 07/20/2017 - 15:23

Is there a future for the informal homecare of older people in a changing society?

The objective of the research reported here was to provide an opportunity to raise issues relevant to the ongoing debate on informal care of older people by exploring the attitudes of both men and woman towards the care of dependant older people. The sample (n = 174) was drawn from age cohorts 20-39 years (n = 90) and 40-59 years (n = 84). The men and women who participated in the study were members of the general public.

Thu, 07/20/2017 - 15:22

Palliative care provided by GPs: the carer's viewpoint

As most terminal and palliative care is in the community, general practitioners (GPs) have an important role to play. This study presents bereaved carers' views of the palliative care provided by GPs. It suggests that symptom control may not be optimal.

Thu, 07/20/2017 - 15:21

Going home to get on with life: Patients and carers experiences of being discharged from hospital following a stroke

Purpose. In this paper we aim to develop the understanding of what constitutes a ‘good’ or ‘poor’ experience in relation to the transition from hospital to home following a stroke.

Method. Semi-structured interviews were carried out with 20 people and 13 carers within one month of being discharged from hospital following a stroke. Interviews covered views of mobility recovery and support from therapy and services. Interviews were transcribed verbatim, coded and analysed in depth in order to explore the discharge process.

Thu, 07/20/2017 - 15:19

Give me a break! Informal caregiver attitudes towards respite care

Background/objective: Because informal health care is now recognized to be indispensable to health care systems, different forms of respite care have been developed and publicly funded that supposedly alleviate caregivers’ perceived burdens and help prolong the care giving task. Nonetheless, the use of respite care services is low even among substantially strained caregivers. To throw light on this low usage, this paper explores the associations between attitudes towards respite care, characteristics of the care giving situation, and the need and use of respite care.

Thu, 07/20/2017 - 15:19

It's everybody's business: care and support for the 21st century

The Right Care, Right Deal coalition combines three of the UK's largest charities working with older people, their families and carers (Counsel and Care, Carers UK and Help the Aged) to urge the Government to renew its vision for the future of social care in England. (See Related Link for the consultation document: The case for change: why England needs a new care and support system, 2008). This campaign document outlines the main issues needed to be tackled in order for there to be 'a new, personalised and better funded deal for social care, fit for the 21st Century'.

Thu, 07/20/2017 - 15:18

Keeping personal budgets personal: learning from the experiences of older people, people with mental health problems and their carers

This report presents findings from research into the experiences of using personal budgets for older people, people with mental health problems and their carers, with suggestions for good practice and future improvement.

Thu, 07/20/2017 - 15:18

Young carers in their own words

An estimated 50,000 children in Britain today regularly take on the hard work and responsibility of caring for a relative who is ill or disabled. These ‘young carers’ were, until recently, a hidden and neglected group in society, unacknowledged and unsupported. There are now over 100 young carers projects throughout Britain, and the Government’s National Carers Strategy document outlines a series of commitments designed to improve young carers’ lives.

Thu, 07/20/2017 - 15:17

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