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Young adults

Sleep Quality in Young Adult Informal Caregivers: Understanding Psychological and Biological Processes

Background: Providing informal care for a relative or friend with medical or mental needs can extol a physical burden on the caregiver, including impaired aspects of sleep quality such as suboptimal sleep duration, lengthened sleep latency, frequent awakenings, daytime sleepiness, and poor self-rated sleep quality. Diminished sleep quality can worsen the health in the caregiver, including dysregulation of hypothalamic-pituitary-adrenal axis (HPA) activity. Few studies have attempted to describe sleep in young adults who provide regular informal care.

Wed, 02/26/2020 - 13:03

Students growing up with a chronically ill family member; a survey on experienced consequences, background characteristics, and risk factors

Background: Students living with a chronically ill family member may experience significant pressure, stress, and depression due to their caregiving situation. This may also lead to them delaying or dropping out of school when the combination of being a caregiver and their education program are too demanding.

Mon, 02/03/2020 - 11:42

Young carers: unknown and underserved

Darling et al discusses the UK's Children and Families Act 2014, Section 96 which defines a young carer as a person under 18 who provides or intends to provide care for another person. A survey in 2018 asking 925 children in England to outline if they provide care, and to describe the care provided and to whom, reveals the extent of caring by children is much higher than previous estimates.

Thu, 12/12/2019 - 12:06

"Death Lay Here on the Sofa": Reflections of Young Adults on Their Experience as Caregivers of Parents Who Died of Cancer at Home

The prevalence of terminally ill patients, who die at home, is increasing. The aim of this study was to address the meaning of being young adults, who were the caregivers of their dying parents. In-depth, semistructured interviews were conducted with 14 Israeli Jewish young adults, who had been the primary caregivers for parents who had cancer and eventually died at home.

Thu, 06/13/2019 - 15:12

A cross‐sectional study on experiences of young adult carers compared to young adult noncarers: parentification, coping and resilience

Background Most young carer studies on parentification, resilience and coping concentrated on child carers up to age 18 years, whereas the group of young adult caregivers (18–24 years) has been neglected. In our study, we focused on these young adult caregivers, who are in a life phase in which young people usually are distancing themselves from their families and are striving for autonomy and freedom. Aim To explore young adult carers’ perceptions of parentification, resilience and coping compared to young adult noncarers.

Sun, 03/31/2019 - 16:54

An isolated involvement in mental health care – experiences of parents of young adults

Aims and objectives: To explore parents’ involvement in the informal and professional care of their young adult child with mental illness. A further aim was to examine concepts in the caring theory of ‘Involvement in the light–Involvement in the dark’ in the context of mental health care.

Thu, 03/07/2019 - 10:37

Health related quality of life during cancer treatment: Perspectives of young adult (23-39 years) cancer survivors and primary informal caregivers

Purpose: There is a paucity of information regarding health related quality of life (HRQoL) of young adults (YAs) with cancer and caregivers. Therefore, we characterize YA and caregiver perspectives on the impact of cancer and its treatment on HRQoL.; Methods: We conducted descriptive qualitative in-depth, semi-structured interviews with YAs receiving cancer care at an academic health center in Albuquerque, New Mexico (USA) and primary informal caregivers.

Mon, 08/20/2018 - 16:30

Young adult carers feel double the pressure at exam time

The article discusses the call of six leading charities for teaching professionals to take note of the huge number of young carers and young adult carers who are providing practical and emotional support to their sick or disabled family members and show how they are building carer-friendly communities. The charities, during Carers Week 2015, highlighted the lack of identification of young carers and young adult carers which leaves them without support.

Thu, 07/20/2017 - 15:22

Challenging behaviour: a guide for family carers on getting the right support for teenagers

This briefing paper provides information for family carers who are supporting a teenager or young adult with severe learning disabilities and behaviour described as challenging, who is approaching transition to adult services. It aims to help carers understand what expect from local services, to help identify what 'good' services look like, to help them ask for the support they and their family need and to help them work in partnership with the professionals.

Thu, 07/20/2017 - 15:22

Bipolar disorder in adults: QS95

This NICE quality standard covers recognition, assessment and management of bipolar disorder in adults (18 years and older) in primary and secondary care. It outlines eight quality statements designed to improve patient safety, patient experience and clinical effectiveness. The eight quality statements are: referral for specialist mental health assessment; personalised care plan; involving carers in care planning; psychological interventions; maintaining plasma lithium levels; valproate; assessing physical health; and supported employment programmes.

Thu, 07/20/2017 - 15:20

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