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The Experiences of Children Living with and Caring for Parents with Mental Illness

This research provides a three-way perspective on the experiences & needs of children who are living with & caring for parents with severe & enduring mental illness. The views of children, parents & key workers were sought in order to provide deeper insight into the needs of families & the nature of interfamilial relationships, as well as the relationships between service users & providers. Child protection & medical research has long proposed a link between parental mental illness & the risk to children of abuse, neglect & developmental delay.

Thu, 07/20/2017 - 15:15

The views of relatives of young people with psychosis on how to design a Relatives Education And Coping Toolkit (REACT)

Background: Relatives of people with psychosis experience high levels of distress. Interventions are needed which can reduce distress and are widely available.

Aims: This study presents the views of relatives on how to design a supported self-management intervention for relatives.

Thu, 07/20/2017 - 15:15

Who cares? The experiences of mental health carers accessing services and information

Rethink regularly carries out social survey research to monitor expert opinion on standards of mental health care. The recent Our Point of View survey, upon which this report is based, asked: are things getting better for the people who use mental health services, their families and friends at the beginning of the 21st Century in Britain?

Thu, 07/20/2017 - 15:15

Carers

The tasks provided by young carers, the support - or lack of it - on which they can draw and the effects the duties can have on their education.

It is estimated that carers carry out the equivalent of 57bn of caring a year. So, health and social services need to work together to support carers in their valuable, and often unrecognised, work.

Thu, 07/20/2017 - 15:15

Informal dementia care: consequences for caregivers' health and health care use in 8 European countries

Background: Informal (dementia) care has economic consequences throughout the health care system. Whilst the health and wellbeing of the care recipient might improve, the health of the caregiver might also change, typically for the worse. Therefore, this analysis aims to examine the association between caregiving intensity and caregivers’ health and health care utilization.

Thu, 07/20/2017 - 15:15

Family caregivers' compassion fatigue in long-term facilities

A Canadian study offers staff in the UK insight into the feelings of hopelessness and sadness that can engulf relatives assisting with care, say Beth Perry and colleagues

Aim: The aim of this study was to explore the presence of compassion fatigue in family carers who assist staff with care of older relatives in long-term settings.

Method: arrative data were collected through observation and conversations with five purposively selected family carers.

Thu, 07/20/2017 - 15:15

Transitions at the end of life for older adults: patient, carer and professional perspectives : a mixed-methods study

Background: The end of life may be a time of high service utilisation for older adults. Transitions between care settings occur frequently, but may produce little improvement in symptom control or quality of life for patients. Ensuring that patients experience co-ordinated care, and moves occur because of individual needs rather than system imperatives, is crucial to patients’ well-being and to containing health-care costs.

Thu, 07/20/2017 - 15:15

Preparing carers to look after palliative care patients at home

Literature review of issues which are of importance to informal carers of people with terminal illness. The advantages and disadvantages of caring for a dying relative and carers' need for information and support are discussed. 4 case studies and a list of useful resources for carers are included and recommendations are made for nursing care. 

Thu, 07/20/2017 - 15:15

The Debenham Project: research into the dementia/memory loss journey for cared-for and carer: 2012-13

This report lays out the findings of research carried out between July 2012 and August 2013 for The Debenham Project in Suffolk, funded by the Norfolk & Suffolk Dementia Alliance. The research sought to obtain information from family carers and cared-for about the memory loss/ dementia journey; a profile of the carers and cared-for; their experiences; and also views from them and others on the positive and negative aspects of early diagnosis and early intervention of/by services.

Thu, 07/20/2017 - 15:15

Who cares? A profile of people who care for relatives with a mental disorder

Objective: To profile the Australian adults who are caring for a relative with a mental disorder.

Method: Data came from the 2007 National Survey of Mental Health and Wellbeing 2007 (NSMHWB), a nationally representative household survey of 8841 individuals aged between 16 and 85 years.

Thu, 07/20/2017 - 15:15

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