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  3. Experiences of patient-family caregiver dyads in palliative care during hospital-to-home transition process

Experiences of patient-family caregiver dyads in palliative care during hospital-to-home transition process

Background: there are many people with advanced cancer who are cared for in the community, though little is known about patients' and family members' lived experiences during discharge from hospital to home. Objectives: to describe the experiences of the patient-family caregiver dyad during the transition from hospital to home at a National Cancer Institute in Colombia. Methods: a descriptive phenomenological approach was taken for this study. Results: Forty-one nominal codes emerged, comprising seven themes that describe the experience of the individual in palliative care and their family caregiver during the transition from hospital to home care. Conclusions: the patient-family caregiver dyad have to deal with symptoms while being confronted with the prognosis and progression of the disease at home. The economic costs in acquiring supplies needed for proper care provision are considerable. In addition there are administrative fees from consultations and accessing the health services. Emotional and spiritual support for the dyad is required. 

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Mark allen (m a healthcare ltd.)
ISBN/ISSN
1357-6321
Publication Year
2017
Issue Number
7
Journal Titles
International Journal of Palliative Nursing
Volume Number
23
Start Page
332
End Page
339