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Richardson, A.

Evaluation of the usability, accessibility and acceptability for a family support intervention (Family-Focused Support Conversation) for end of life care discharge planning from hospital: A participatory learning and action research study

Background: Family support is internationally recognised as integral to palliative care. However, during end of life care discharge planning from hospital, families report a lack of opportunity to discuss their concerns or contribute their knowledge of the ill family member and consequently feel unheard and unsupported.

Sat, 08/27/2022 - 11:40

A qualitative study of carers' experiences of dementia cafes: a place to feel supported and be yourself

Background: Unpaid, informal carers or caregivers play an important role in supporting people living with dementia but the role can be challenging and carers themselves may benefit from support. Alzheimer’s, dementia or memory cafés are one such form of support . These cafés are usually provided in the voluntary sector and are a place where people with dementia and those supporting them, usually family carers, can meet with others in similar situations.

Mon, 03/25/2019 - 12:56

Developing supportive care for family members of people with lung cancer: a feasibility study

Purpose: Families provide crucial support, yet their own needs often go unrecognised and, as a consequence, remain unmet. The purpose of this study was to evaluate a newly developed supportive intervention for family members of patients with lung cancer.

Thu, 07/20/2017 - 15:24

Unrecognised and Underprepared: an Exploratory Mixed Method Study of Informal Carers' Experiences of Supporting Someone Through Chemotherapy

Thu, 07/20/2017 - 15:24

Enhancing the experience of carers in the chemotherapy outpatient setting: an exploratory randomised controlled trial to test impact, acceptability and feasibility of a complex intervention co-designed by carers and staff

Purpose: Supporting someone through chemotherapy can be emotionally and physically demanding. However, research has yet to establish the type of support carers require or the best way to provide this. This study tested the feasibility and acceptability of a complex intervention for carers that was co-designed by staff and carers of patients starting chemotherapy.

Thu, 07/20/2017 - 15:23

Using experience-based co-design (EBCD) to enhance support for carers in the chemotherapy outpatient setting

Developments in diagnostics and treatment  have contributed to increasing numbers of people becoming long term cancer survivors. However, these improvements are not always reflected in better patient experience...

Thu, 07/20/2017 - 15:22

The experiences of older adults in the community dying from cancer and non-cancer causes: A national survey of bereaved relatives

Background: there is limited understanding of symptoms and care in the last few months of life for adults dying from causes other than cancer.

Objective: the aim of the study is to compare the experiences in the community in the last 3 months of life of older adults dying from cancer and non-cancer causes.

Design: the study employed a retrospective cross-sectional survey of bereaved relatives.

Setting: the survey took place across eight cancer networks in England.

Thu, 07/20/2017 - 15:15

Nurses' experience of delivering a supportive intervention for family members of patients with lung cancer

Families contribute to maintaining the well-being of people with cancer through providing emotional and practical support, frequently at significant cost to their own well-being, and often with little help from healthcare professionals. This paper describes nurses' experience of providing an innovative service to support the families of people with lung cancer. A process of group reflection by the three nurses involved in delivering the intervention has produced an autoethnographic account of taking part in this study.

Thu, 07/20/2017 - 15:15

Uncertainty and anxiety in the cancer of unknown primary patient journey: a multiperspective qualitative study

Background Patients with cancer of unknown primary (CUP) have metastatic malignant disease without an identifiable primary site; it is the fourth most common cause of cancer death.

Objectives To explore patients’ informal and professional carers’ experiences of CUP to inform development of evidence-based, patient-centred care.

Thu, 07/20/2017 - 15:14

The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England

The aim of this study was to explore the needs of carers of men with prostate cancer and to identify barriers and enablers to meeting these needs. Carers were recruited to focus groups or interviews. These were recorded, transcribed and analysed by two researchers using Nvivo QSR6 and the Framework approach to index, chart and analyse data to identify emergent themes of the needs of carers, and barriers and enablers to meeting these needs. Fifteen carers took part in focus groups and 19 were interviewed. Carers' needs varied and were often unmet because of barriers to existing services.

Thu, 07/20/2017 - 15:13

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