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Schnepp, Wilfried

Psychometric evaluation of the German version of a social support scale of FAFHES (Family Functioning, Family Health and Social Support)

Background Family members often need to be supported in informal care of the elderly and desire to be involved into care planning and decision‐making.

Tue, 08/04/2020 - 14:28

An integrative review on family caregivers' involvement in care of home-dwelling elderly

Often family members provide care-giving, which allows older adults to remain in their homes. With declining health and increasing frailty, care-giving of elderly people becomes a task of family caregivers (FC) in conjunction with home care nurses. It has been shown in both acute care settings and long-term care facilities that family members prefer to be involved in decision-making and care planning for their next of kin. Therefore, an integrative review was conducted to explore the body of knowledge of FCs' involvement in home-care settings from the FCs' perspective.

Thu, 04/04/2019 - 18:53

Young carers in Germany: to live on as normal as possible - a grounded theory study

Background: In contrast to a growing body of research on the situation of adult family care givers, in Germany hardly anything is known about the situation of children and teenagers who are involved in the care of their relatives.

Methods: In this Grounded Theory study 81 semi structured interviews have been carried out with children and their parents in 34 families, in which one member is chronically ill. 41 children and 41 parents participated and the sample is heterogeneous and diverse.

Thu, 07/20/2017 - 15:23

Assessing the effect of a complex psychosocial intervention: a methodological note on determining measurement intervals

Aim Guidelines describing how to carry out a randomised controlled trial (RCT) provide no advice concerning when to measure an intervention effect. Possibly as a result, most papers give no rationales for the time frames chosen for data collection. This paper discusses four general strategies to identify when to collect data. Furthermore, an additional individual strategy concerning the current German young carers project is presented.

Thu, 07/20/2017 - 15:21

Implementing and evaluating the first german young-carers project: intentions, pitfalls and the need for piloting complex interventions

The aim of the study was to develop, implement and evaluate a concept for the first support program for young carers and their families in Germany.

Thu, 07/20/2017 - 15:15

The use of health-related quality of life (HRQOL) in children and adolescents as an outcome criterion to evaluate family oriented support for young carers in Germany: an integrative review of the lite

Background: Young people below the age of 18, whose lives are affected by looking after a relative with a disability or long-term illness, are called young carers. Evidence based family oriented support for young carers and their families in Germany is currently being developed. To allow for scientific evaluation, an outcome criterion needs to be chosen. Until today, there are no assessment instruments available, which focus on young carer's specific demands and needs.

Thu, 07/20/2017 - 15:13

CarenapD -- a need-assessment for families with dementia; first use in Germany

In Germany the community care system is still not developed to meet the needs of families with dementia. The Scottish need-assessment CarenapD (Care Needs Assessment Pack for Dementia) records the need status of persons with dementia and initiates a care plan. Also the needs of informal carers are measured. After translating the assessment into German language, its practicality and adaptability was tested in this study from the perspective of the professional user. Also was tested, how the CarenapD results interpret the community care.

Thu, 07/20/2017 - 15:11

Germany's First Young Carers Project's Impact on the Children: Relieving the Entire Family. A Qualitative Evaluation

Background: In 2009, the first German young carers project “SupaKids” was implemented in a large German city. The project’s concept was mainly based on findings of a prior Grounded Theory study, and the concept’s aim was to focus on supporting enrolled families (especially the children) in order to prevent negative effects. Quantitative as well as qualitative data have been assessed for the project’s evaluation. In this paper, first results on the mainly qualitative evaluation concerning the project’s impact are presented.

Thu, 07/20/2017 - 15:08