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Wimo, A.

Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice

Objective: The Actifcare (Access to timely formal care) study investigated needs of people with dementia and their families during the phase in which formal care is being considered, and examined whether higher need levels are related to lower quality of life (QOL). Method: From eight European countries 451 people with dementia and their carers participated. Needs were measured with the Camberwell Assessment of Need for the Elderly. QOL was measured with the QOL-AD, and carer quality of life was measured with the CarerQol.

Wed, 04/03/2019 - 09:36

Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

Objectives: To identify caregiver profiles of persons with mild to moderate dementia and to investigate differences between identified caregiver profiles, using baseline data of the international prospective cohort study Actifcare. 

Methods: A latent class analysis was used to discover different caregiver profiles based on disease related characteristics of 453 persons with dementia and their 453 informal caregivers. These profiles were compared with regard to quality of life (CarerQoL score), depressive symptoms (HADS-D score) and perseverance time. 

Mon, 03/18/2019 - 15:18

Access to community care for people with dementia and their informal carers : Case vignettes for a European comparison of structures and common pathways to formal care

Background: People with dementia and their informal carers often do not receive appropriate professional support or it is not received at the right time.; Objectives: Description and comparison of common pathways to formal community dementia care in eight European countries as a part of the transnational Actifcare project.; Materials and Methods: The German team was responsible for creating an individual case scenario as a starting point.

Wed, 01/23/2019 - 15:21

The amount of informal and formal care among non-demented and demented elderly persons - Results from a Swedish population-based study

Background: Developed countries are experiencing a dramatic increase in the proportion of elderly persons, as well as a progressive aging of the elderly population itself. Knowledge regarding the amount of formal and informal care and its interaction at population-based level is limited.

Objectives: To describe the amount of formal and informal care for non-demented and demented persons living at home in a population-based sample.

Thu, 07/20/2017 - 15:23

Analysis of burden in caregivers of people with Alzheimer’s disease using self-report and supervision hours

Objectives: This study aimed to describe the baseline characteristics of informal carers of community-living Alzheimer’s disease (AD) patients by AD severity group and to identify factors associated with two measures of caregiver burden.

Design and setting: GERAS is a prospective observational study in France, Germany, and the UK, designed to assess costs and resource use associated with AD, for patients and their caregivers, stratified by disease severity.

Participants: 1497 community-dwelling AD patients and their primary caregivers.

Thu, 07/20/2017 - 15:16

Cost-effectiveness of treatments for Alzheimer's dementia

Care of dementia is extremely resource demanding and has a great impact on both the formal care systems and the situation for informal carers. Thus, the question of cost–effectiveness is crucial. This presentation is, to a great extent, based on the dementia project by the Swedish council on technology assessment in health care. After the database search and quality judgment of papers, 22 papers of drug treatment were finally included. A summary of the situation as regards cost–effectiveness on drugs for Alzheimer’s disease showed that no evidence could be stated on empirical studies.

Thu, 07/20/2017 - 15:11