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Taylor & Francis Ltd

Spiritual needs and practice in chronically ill children and their families in the Isan region of Thailand

This research is a qualitative study of the spiritual needs and practice of chronically ill children and their families in the Isan region of Thailand. The purposive sampling was 17 chronically ill children aged 10–18 years old and primary caregivers. Three instruments were used: a questionnaire, in-depth interview with questions adapted from the Spiritual Assessment Scale (SAS) by O'Brien, and non-participant observation. Field note-taking and voice recordings were used for data recording. Triangulation was used before analysis to test for credibility.

Tue, 12/20/2022 - 16:50

Factors influencing nurse-to-parent communication in culturally sensitive pediatric care: a qualitative study

Background: To deliver quality healthcare to diverse patients, effective commmunication is key. Little evidence exists about what factors influence nurse-to-parent communication in culturally sensitive pediatric care. Objective: The aim of this study was to explore factors that influence nurse-to-parent communication in the provision of culturally sensitive pediatric care. Design: This study employed a qualitative content analysis.

Tue, 12/20/2022 - 11:58

Development and validation of a caregiving needs inventory for family members before their older relative's knee joint-replacement surgery

Objectives: This study had two purposes: to develop an instrument for assessing family members' caregiving needs before their older relative's knee joint-replacement surgery and to determine instrument psychometrics. Methods: In phase 1 of this validation study, we generated 34 items based on previous interviews with 138 family caregivers of patients with knee osteoarthritis (OA), an intensive literature review, and the authors' clinical experiences.

Tue, 02/08/2022 - 16:17

Contributors and Moderators of Quality of Life in Caregivers of Alzheimer´s Disease Patients

Aim and objective: This study aimed to identify the variables that contributed to Quality of Life (QoL) of Alzheimer's Disease (AD) caregivers, taking into consideration the caregiving context, stressors, role strains, and resources.

Tue, 02/01/2022 - 16:31

"I'm just trying to cope for both of us": Challenges and supports of family caregivers in participant-directed programs

Recently, national attention has focused on the needs of family caregivers providing complex chronic care, noting the necessity to better understand the scope of challenges they encounter. Although a robust body of literature exists about the scope of family caregiving, little is known specifically about the experiences and perspectives of family caregivers who support participant directed (PD) participants, particularly across the caregiving trajectory.

Wed, 06/26/2019 - 12:00

Stakeholder Engagement to Enhance Interventions for Family Caregivers of People with Dementia: A Case Study of Care to Plan

Family members are prominent providers of necessary care to persons with dementia. The psychological, emotional, and social costs of care have led to the development of interventions to support these families. Although evidence supports the effectiveness of dementia caregiver interventions, few have been implemented into practice. Stakeholder involvement may increase the potential for interventions to be integrated into community contexts.

Tue, 06/25/2019 - 13:38

Family Caregivers, AIDS Narratives, and the Semiotics of the Bedside in Colm Tóibín's The Blackwater Lightship

This article examines the ways in which Colm Tóibín's The Blackwater Lightship carefully negotiates media discourses on HIV/AIDS and the genre of the AIDS narrative in order to shed new light on the physical and emotional experience of being a family caregiver. The novel elevates the otherwise mundane bed to the status of a symbol that reflects a myriad of unspoken social relations and shows how the daily life of the caregiver challenges their ideals, stretches emotional limits, and heightens interdependency.

Tue, 06/25/2019 - 13:29

Challenges to and Strategies for Formal Service Utilization among Caregivers in an Underserved Community

Family caregivers face enormous challenges when attempting to oversee the medical, legal, financial, and daily affairs of loved ones with chronic or life-limiting illness. While formal services and agencies exist to assist caregivers with some of these tasks, caregivers in underserved communities do not utilize these services, or utilize them with unsatisfactory results.

Mon, 06/24/2019 - 16:00

Support Needs for Family Caregivers of Clients with Mental Illness in Iran: A Qualitative Study

This paper explored the support needs of family caregivers of people living with a mental illness in Iran. This descriptive study focused on the experiences of 20 family caregivers as well as the views of 29 professional support workers through individual face-to-face interviews. From these interviews three key themes emerged in regards to the care needs of family caregivers: (i) social support; (ii) emotional support; and (iii) safety and security.

Thu, 05/23/2019 - 11:16

The Impact of Caring for Persons with Stroke on the Leisure Occupations of Female Caregivers

Aim: The purpose of this phenomenological study is to contribute to the literature surrounding caregivers of persons with stroke and to understand the caregivers' perspective on leisure participation and quality of life. Methods: Caregivers (n = 4) of clients with stroke were recruited for the study via convenience sampling. Participants were audio-recorded during a semi-structured interview lasting 60–80 minutes. The interview guide included open-ended questions about the participant's leisure participation and quality of life.

Fri, 04/12/2019 - 15:45