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Taylor & Francis

Exploring the experiences of family caregivers with people with drug-resistant tuberculosis

Background: The South African health system faces major challenges: crumbling infrastructure, shortage of beds and health professionals, and a high burden of diseases such as Tuberculosis and HIV/AIDS. The emergence of Drug Resistant Tuberculosis has made matters worse, as some of the burden of care for patients was transferred from nurses at hospitals to families in communities after patient discharge. Objective: This study explores and describes experiences of family caregivers caring for family members with Drug Resistant Tuberculosis living at home.

Tue, 03/01/2022 - 09:16

Explanatory models of stroke in Ghana: perspectives of stroke survivors and their caregivers

Objective: This study examines explanatory models (EMs) of stroke and its complications among people living with stroke, and their caregivers, in two urban poor communities in Accra (Ga Mashie) and Korle Bu Teaching Hospital (KBTH), Accra. Methods: Twenty-two stroke survivors and 29 caregivers were recruited from 2 urban poor communities in Accra and KBTH. Qualitative data were obtained using semi-structured interviews that lasted between 45 minutes and 2 hours.

Mon, 02/28/2022 - 11:52

The experiences of well-being of family caregivers in palliative care: A qualitative study using thematic analysis

Background: Family caregivers play an important role in supporting patients at the end of life. Although providing care for palliative care patients can be inherently stressful, it is possible for family caregivers to experience both positive experiences and stress simultaneously. Understanding these positive experiences can be helpful to aid counterbalancing the negative aspect of caregiving.

Mon, 02/28/2022 - 11:16

Experiences of family caregivers with day-care centers for elders in Southern China: a qualitative study

Background: With its massive older population, China faces challenges related to elderly support and care. One of the proposed solutions is to diversify elderly support systems. Towards this goal, the establishment of day-care centres is a new Chinese endeavour. Methods: This qualitative study was conducted among the family caregivers of elderly residents enrolled in day-care centres in Shenzhen, a Southern Chinese city, to explore and understand the experiences and factors that might affect family caregivers of frail elders enrolled in day-care centres.

Mon, 02/28/2022 - 10:30

Employment and well-being among caregivers of children with autism spectrum disorder

Methods: We used the 2016–2018 National Survey of Children’s Health to assess restricted work participation among caregivers of children with autism spectrum disorder (ASD) and special health care needs (SHCN). Results: Caregivers of children with ASD (N = 2,041) were especially likely to avoid changing jobs to keep health insurance coverage (20%; 95% CI: 16%, 24%), compared to either caregivers of children with other SHCN (N = 18,189) or children without SHCN (N = 68,499).

Mon, 02/21/2022 - 11:24

Embarking to Caregiving Role: A Thematic Analysis of Malay Caregivers of Older Adults with Mental Health Problems Perspectives

Background: Religion and culture affect the meaning and practicalities of caring for families with mental illness in Malaysia. Such care also differs according to social background, family values and support, commitment, availability, practicality and the needs of the care recipient. Methods: This qualitative study explores 14 Malay caregivers of the older adults with mental health problems in Kelantan, Malaysia. A semi-structured interview was translated and transcribed and subjected to thematic analysis using NVivo software.

Mon, 02/21/2022 - 10:45

Effects of Interpersonal Psychotherapy (IPT) Techniques and Psychoeducation on Self-Efficacy and Care Burden in Families of Patients with Schizophrenia

Objectives: This study aims to investigate the effects of two different interventions on the self-efficacy and care burden in caregiver family members of patients with schizophrenia. Method: This semi-experimental study involved those caring for family members with schizophrenia. The family members were divided into two experimental groups and one control group. Interpersonal psychotherapy techniques and psychoeducation interventions were together applied to the first group, the second group received only the psychoeducation.

Sat, 02/12/2022 - 20:28

Do informal caregivers experience more burnout? A meta-analytic study

Background: Informal caregivers often report exhaustion when providing care, which can be related to forms of burnout. Yet, there is no systematic inventory of studies comparing caregivers and non-caregivers in terms of burnout. Methods: For the present meta-analysis, studies comparing burnout in informal caregivers and non-caregivers were screened and included. Findings: Two categories of studies were found: those on family care burnout (spousal or parental burnout) and those on professional burnout (mostly in healthcare).

Wed, 02/09/2022 - 19:05

Differences in Burden Severity in Adult-Child Family Caregivers and Spousal Caregivers of Persons with Dementia

Background: Researchers are continuing to focus on the nature and sources of burden of family caregivers of persons living with dementia. Caregiving stress and burden are assessed and addressed by social workers, including at high-risk times such as hospitalization.

Wed, 02/09/2022 - 11:16

Differences among Caregivers on Coping Resources and Mental Health

Background: Given the growing number of family members who provide care to adults with a disability or illness, this study examined differences in coping resources and mental health among family caregivers of persons with various health conditions. Methods: Within the context of Ensel and Lin’s stress paradigm, 234 family caregivers participated in an online study by completing validated measures of resourcefulness, spiritual practices, caregiver burden, anxiety, and depression.

Wed, 02/09/2022 - 11:07

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