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Enabling Social Change with Immigrant and Refugee Caregivers: Beyond Dualistic Difference to Intersectionality

A personal narrative is presented which explores the author's experience of participating in a case study of his work for an immigrant and refugee women's health organization in Australia, to deliver multilingual health education and peer support to informal family caregivers in Melbourne, Victoria.

Fri, 05/24/2019 - 09:50

The intersection of formal and informal care for older people in a multicultural society: the case of two adult day-care centres in Northern Israel

Despite being a relatively young society, Israel, like many other countries, has not escaped the global ageing phenomenon. About 11% of its population are aged 65 years or older; this compares with an average of 18% in many European countries. About 75% of Israel’s population are Jewish and about 21% are Arabs (CBS, 2017).[...] Despite the fact that more older people – from both communities – are now accepting a mix of support from their families alongside services, families are still the main source of care for older people in Israel (Katz et al, 2015).

Fri, 05/24/2019 - 09:03

Engaging men as fathers and caregivers: an entry point to advancing women's empowerment and rights

Engaging men and boys to do unpaid care work is key to achieving gender justice. This article argues that caregiving programmes with men can be effective and serve as an entry point to engage men as allies for feminist agendas. There is a need to increase the uptake and scale-up of such initiatives, while ensuring quality, local contextualisation and ownership, and full accountability to women and girls.

Thu, 05/23/2019 - 15:41

Making a world of difference for carers: the Pathways for Carers project

Local government, service providers and community members are working together to make a difference in the lives of carers and those they care for in a community in Australia. Maroondah City Council is located 25 km east of Melbourne, in the state of Victoria, at the foot of Mount Dandenong. Maroondah covers an area of 61 km2 and has a population of about 112,300 people.

Thu, 05/23/2019 - 15:12

Commentary on the paper 'Dementia diagnosis and white lies: a necessary evil for carers of dementia patients?'

‘Thou shalt not lie’; ‘the truth, the whole truth, and nothing but the truth’. Both morality and the law contain clear statements about the importance of veracity. Yet, as Ginny Russell so eloquently describes, based upon personal experience with her mother in the UK, truth telling in dementia is fraught with problems. The problems are not only ethical, but can also be practical and emotional. They can arise on a daily basis for the family and friends of people with dementia, as well as for care staff and professionals.

Thu, 05/23/2019 - 14:45

Dementia diagnosis and white lies: a necessary evil for carers of dementia patients?

I am the daughter and one of the main carers for my 90-year-old mother. My mother was diagnosed with dementia in 2015. In this article, I reflect on dealing with my mother's progressive disability, with a focus on one experience. I explain why I believe withholding the truth is sometimes an acceptable, or even a preferable, course of action. The article illustrates how differing advice and lack of guidance about dementia diagnosis and 'truth-telling' play out in practice.

Thu, 05/23/2019 - 14:41

Weathering the perfect storm: facing the challenge of maintaining gains for carers against a background of shrinking resources in one area of England

These are not easy times for carers in England. While English legislation and government policy are more carer-friendly than ever before, resources are under increasing pressure from both the exploding ‘demographic time-bomb’ and ‘austerity’. This has followed the global financial crash of 2008, subjecting the whole of the public sector to significant cuts. [...] If access to formal care has proportionately reduced, we must drive additional value from a more integrated voluntary and statutory sector ‘system’.

Thu, 05/23/2019 - 14:37

Defining and profiling family carers: reflections from Ireland

The word ‘carer’, meaning family carer, is now widely used, especially in Western cultures. However, it is open to interpretation, is employed differently depending on circumstance, sector and setting, is at times resisted as a label by carers themselves, and is evolving as a term and role. This contribution reviews the term ‘carer’ and how it is understood, with particular reference to Ireland.

Thu, 05/23/2019 - 14:08

The business case for employers supporting carers: reflecting on a UK model

Recruiting, retaining and returning carers to the workplace have already been identified as major economic and social issues in the UK. They are likely to become even more important as a consequence of demographic and economic pressures on families and employers (HM Government et al, 2013). This article sets out the current and future context regarding working carers, as well as the business response in terms of policy and practice, highlighting what has been achieved and what has yet to be addressed.

Thu, 05/23/2019 - 14:03

InformCare: the European information hub on family care

An increasing amount of research in Europe – and beyond – has focused on the development of innovative solutions for providing support services to family carers of frail older people. This is especially the case in terms of web-based programmes. [...] There is clearly a role for well-designed and robustly supported web-based support platforms like InformCare in helping to sustain carers, deliver policy aims and ensure carer access to information, advice and support.

Thu, 05/23/2019 - 13:59