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Reading, writing and responsibility: Young Carers and Education

Across Australia, teachers, school counsellors and psychologists, welfare officers and Education department staff participated in the project by offering advice to the research team, by completing surveys and participating in focus group interviews. The research team would like to thank those who offered their time, experience and knowledge. In particular, we would also like to acknowledge the generosity, wisdom and insight of all the children and young people who participated in the project.
Thu, 07/20/2017 - 15:10

Living through end-stage dementia: the experiences and expressed needs of family carers

The focus of this paper is the experiences and needs of family carers of people with end-stage dementia. The project involved in-depth, qualitative interviews with 15 carers. The major themes emerging from the accounts of participants' experiences were: getting support; having to trust others with care; managing the loneliness of being a carer; witnessing a loved one fade away; anticipating and experiencing death; and re-establishing life after the funeral. Carers expressed a range of instrumental and psychosocial needs.

Thu, 07/20/2017 - 15:10

Present and past carers' health: some considerations

We sought to examine the mental and physical health and health-related quality of life of current and past carers compared to non-carers, using two instruments—the Short Form-12 (SF-12) and the EuroQol 5-dimension (EQ-5D). A total of 249 participants (34 current carers, 14 previous carers, 197 non-carers, 4 non-respondents) completed a baseline self-report survey at randomization into the larger study.

Thu, 07/20/2017 - 15:10

Home or hospital? an evaluation of the costs, preferences, and outcomes of domiciliary chemotherapy

This study compares the costs and outcomes of domiciliary and hospital-based chemotherapy, using a prospective randomized cross-over design. Eighty-seven eligible patients were recruited from oncology services at two metropolitan hospitals in Sydney, Australia. Forty patients completed study evaluation requirements, having two months of chemotherapy in each location (home and hospital). The domiciliary service was staffed by hospital-based oncology nurses. Marginal costs of domiciliary treatment over hospital treatment were estimated from the health service perspective.

Thu, 07/20/2017 - 15:09

Economic deprivation and its effects on subjective wellbeing in families of people with multiple sclerosis

Background: There has been limited research on the role of financial strain on the adjustment of people with multiple sclerosis.

Aims: This study examined the financial costs of MS and the impact of financial strain on the quality of life and adjustment of people with MS and their families.

Methods: Interviews were conducted with 16 health professionals, 26 people with MS and 11 family members of people who have MS.

Thu, 07/20/2017 - 15:09

The employment transitions of mid-life women: health and care effects

This article provides information on the movements into and out of paid work by mid-life women. This is a group whose representation in the paid workforce is growing as population ageing proceeds and as educational qualifications expand. It is also a group that will be critical to any labour supply response to the economic challenges posed by population ageing. However, current understandings of the needs and circumstances of mid-life women in paid work are limited.

Thu, 07/20/2017 - 15:09

Respite care for caregivers and people with severe mental illness: literature review

Aim.  The aim of this study was to review research literature over the past 10 years on respite care for people affected by severe mental illness; and identify key implications for nursing practice in provision of respite care for family caregivers of people with severe mental illness.

Thu, 07/20/2017 - 15:09

Conducting a study to improve information exchange and develop communication strategies for informal carers of palliative care patients (and patients without carers): a team approach

The purpose of this paper is to report on research in progress. The research is being undertaken by the Sacred Heart Palliative Care Community Service (SHPCCS) multidisciplinary team on information and communication issues for carers of palliative care patients and patients without carers. The aim of the study is to explore the information needs of informal carers and patients without carers. A mixed methods, mixed methodology within a case study design has been use to conduct the study and the progress thus far has highlighted a number of challenges for the team.

Thu, 07/20/2017 - 15:09

Reactions to caregiving of frail, older persons predict depression

Reactions to caregiving and depression affect a carer's ability to continue in their caring role. This paper examines the relationship between reactions to caregiving and depression in carers of frail, older people and is a cross-sectional study of carers of community-living people (70 years), identified as frail, who completed a postal questionnaire. Reactions to caregiving were evaluated using the Caregiver Reaction Assessment. Anxiety and depression symptoms were measured using the Hospital Anxiety and Depression Scale.

Thu, 07/20/2017 - 15:08

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