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burden of care

Caregivers’ estimation of patients’ quality of life (QoL) in Alzheimer's disease (AD): An approach using the ADRQL

The purpose of this study was to describe the QoL of patients with AD (PAD) as perceived by family caregivers, and to analyze the correlates of such QoL. This study covered 92 PAD enrolled in a cognitive-motor stimulation study. The severity of cognitive impairment ranged from mild cognitive impairment to severe dementia. QoL was measured using the AD-related quality of life (ADRQL) scale. Social and clinical variables (for both PAD and caregiver) as well as other variables relating to cognition, activities of daily living (ADL), behavior, mood and caregiver burden were recorded.

Thu, 07/20/2017 - 15:11

Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients

Objective: Female family caregivers consistently report higher levels of stress and burden compared to male caregivers. Explanations for the apparently higher psychological vulnerability of female caregivers are largely missing to date. This study assesses the correlates and determinants of caregiver burden in family caregivers of advanced cancer patients with a specific focus on gender differences.

Thu, 07/20/2017 - 15:09

Carrying the Weight

The author reflects on her work at a child and youth care worker program in Algonquin, Ontario. She relates the stories of families that arrive at the shelter, as well as the sacrifices of young carers in these families. According to the author, her work at the shelter provided an opportunity to observe family functioning. She emphasizes that the goal of providing support and service to the family is to ease the responsibility or burden of the young caregiver.

Thu, 07/20/2017 - 15:09

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