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Informal care

Support network transformations in the first stages of the caregiver's career

The purpose of this article is to propose a method to facilitate analysis of the processes involved in the transformation of support networks for caregivers of persons with dementia. The authors are particularly interested in the preliminary phases of the caregiver's career: the initial period ranging from the first manifestations of dementia to the confirmation of a diagnosis. This method combines the social network approach with narratice analysis.

Thu, 07/20/2017 - 15:11

Longitudinal perspectives on caregiving, employment history and marital status in midlife in England and Wales

In this paper, we examine associations between employment history and marital status and unpaid care provision among those aged 40–59 in England and Wales. We used data from a large nationally representative longitudinal study, the Office for National Statistics Longitudinal Study. Initially based on a sample drawn from the 1971 Census, in 2001 this study included data on 110 464 people aged 40–59 of whom 5% provided 20 or more hours per week of unpaid care.

Thu, 07/20/2017 - 15:11

Care provision within families and its socio-economic impact on care providers

The European Commission (DG EMPL) invited tenders for a study of care provision within families and the socio-economic impact of family care-giving. The tender was won by a team of researchers from the Social Policy Research Unit, University of York, England and Vilans, the Dutch Expertise Centre on Long-Term Care.

Thu, 07/20/2017 - 15:11

From provider to enabler of care? reconfiguring local authority support for older people and carers in Leeds, 2008 to 2013

This article explores developments in the support available to older people and carers (i.e., caregivers) in the city of Leeds, United Kingdom, and examines provision changes during a period characterized by unprecedented resource constraint and new developments in national-local governance. Using documentary evidence, official statistics, and findings from recent studies led by the author, the effects of these changes on service planning and delivery and the approach taken by local actors to mitigate their impact are highlighted.

Thu, 07/20/2017 - 15:10

Short- and medium-term effects of informal care provision on female caregivers’ health

In this paper, we present estimates of the effect of informal care provision on female caregivers' health. We use data from the German Socio-Economic Panel and assess effects up to seven years after care provision. The results suggest that there is a considerable negative short-term effect of informal care provision on mental health which fades out over time. Five years after care provision the effect is still negative but smaller and insignificant. Both short- and medium-term effects on physical health are virtually zero throughout.

Thu, 07/20/2017 - 15:10

Quality of life and social isolation among caregivers of adults with schizophrenia: policy and outcomes

Services have been increasingly directed at supporting carers of people living with mental illness but it is difficult to evaluate the impact of service change where benchmarks for carer functioning are sparse. Sixty Australian carers were assessed regarding their quality of life, psychological distress, social isolation and caregiving experience. Their scores were compared with two matched community samples and previous studies. Carers were ten times more likely to be socially isolated and quality of life was significantly less than matched community samples.

Thu, 07/20/2017 - 15:10

Partners in care: who cares for the carers?

Little time may be taken to listen to what carers have to say or explain clinical and service policies. The odd 5 minutes at the end of a busy clinic is not enough; being paraded in front of the ward round is simply unacceptable, but it still happens. A 20-mile trip for family carers just as imprisoned by the patient’s mental illness, geographically and financially, may be impossible.

Thu, 07/20/2017 - 15:10

Becoming a caregiver: New family carers' experience during the transition from hospital to home

AIMS AND OBJECTIVES: To explore and understand the experience of new informal caregivers in Italy during the transition from hospital to home.

BACKGROUND: Frequent patient discharge into the home environment has lead to a significant increase in postdischarge care being provided by family caregivers. The transition period in particular is seen as a period of great significance, as caregivers may be unprepared and concerned as to the amount of care required by the recipient.

Thu, 07/20/2017 - 15:10

The opportunity costs of informal care: does gender matter?

In this paper, we investigate the costs borne by both male and female carers in terms of their forgone formal employment opportunities. Traditionally, informal care was supplied by women but nowadays women are not only more likely to work, but also likely to be significant contributors to family finances. For women, this implies that the size of any forgone earnings cost of informal care is increasing. At the same time, population ageing is making for increasing numbers requiring care.

Thu, 07/20/2017 - 15:10

Labor market outcomes of informal care provision in Japan

This paper examines the labor supply outcomes of family care provision for Japanese households in 2010, ten years after the introduction of the public long-term care insurance (LTCI) program. We found that family care provision for parents adversely affected labor market outcomes of main caregivers at home in terms of the probability of working, employment status and hours worked. The adverse effect was found to be more serious for female caregivers than for male caregivers.

Thu, 07/20/2017 - 15:10