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Qualitative research

The experiences and preparedness of family carers for best interest decision-making of a relative living with advanced dementia: A qualitative study

Aim: To explore the experience and the preparedness of family carers in their caregiving role as best interest decision-makers of a relative living with advanced dementia. Background: The prevalence of dementia is a global issue. The role of being a carer of a relative living with dementia does not necessarily lessen once they are admitted to a nursing home. Best interest decision-making including end-of-life care decisions need to be made and reaching these choices can be challenging.

Mon, 09/10/2018 - 11:50

Experiences of being a family member to an older person with diabetes receiving home care services

Aim: To describe family members' experiences of attending to an old person with diabetes receiving home care services, including their interaction with the formal caregivers. Methods and Results: The study has a qualitative descriptive design. From May to August 2015, eight family members were interviewed. Interviews were analysed using qualitative content analysis.

Thu, 08/30/2018 - 11:51

Understanding experiences of undergoing transcatheter aortic valve implantation: one-year follow-up

Background: Transcatheter aortic valve implantation (TAVI) is the treatment of choice for frail, older adults with severe symptomatic aortic stenosis. Although research about long-term clinical outcomes is emerging, there is limited evidence from the perspectives of patients and family caregivers on their perceived benefits and challenges after TAVI. Aims: The aim of this study was to describe older adults and family caregivers’ perspectives on undergoing TAVI at one year post-procedure.

Thu, 08/30/2018 - 11:28

The experiences of Turkish families caring for individuals with Schizophrenia: A qualitative inquiry

Background: In Turkey, individuals with schizophrenia usually live with their families. Therefore, families are main caregivers and face psychological, financial and social problems. Aim: The aim of this study is to understand the personal burdens and coping strategies, and social support affecting the families that provide care to the individuals with schizophrenia. Methods: In-depth interviews were conducted with 31 members of 12 families.

Fri, 08/24/2018 - 12:58

Understanding patient and relative/carer experience of hip fracture in acute care: A qualitative study protocol

Background: This paper presents a qualitative study protocol focusing on older peoples' experience of recovery in acute care following hip fracture and also the experiences of their family or informal carers. There is limited evidence regarding older people and their relatives'/carers' experiences of recovery in acute care.; Aim: The study had two research questions.

Wed, 08/22/2018 - 14:44

The experiences of people with dementia and their carers participating in individual cognitive stimulation therapy

Background: The carer-delivered individual cognitive stimulation therapy (iCST) was developed to improve cognition and quality of life of people with dementia. This study aims to explore people with dementia and family carers' concepts of mental stimulation and experiences of participating in the iCST intervention.; Methods: A sub-sample of 23 dyads of people with dementia and their family carers who completed the iCST intervention took part in semi-structured in-depth interviews.

Mon, 08/20/2018 - 15:55

Experiences of caregivers of patients with metastatic cancer: What can we learn from them to better support them?

Purpose: Family caregivers of cancer patients often face strains within their role and report various unmet needs. The aim of this qualitative study was to examine metastatic cancer caregivers' experiences within their role.; Methods: A cross-sectional study using focus group interviews with caregivers of metastatic cancer patients (n = 17) recruited from an oncology hospital in Cyprus was conducted.

Mon, 08/20/2018 - 15:46

Working with Families Affected by Mental Distress: Stakeholders' Perceptions of Mental Health Nurses Educational Needs

Family and informal caregivers provide a substantial amount of care and support to people who experience mental health problems. The aim of this study was to explore mental health nurses', students' and service users' perceptions of the knowledge, skills and attitudes that are required by mental health nurses to work with families and carers using a qualitative methodology. Three themes emerged from the data: Knowledge of the family and how mental distress affects the family; working with the family – support and education; and valuing the role of the family.

Fri, 08/17/2018 - 16:22

Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy

Family caregivers are the backbone of the long-term care support system within the home environment. Comprehensive caregiver support programs require collaboration and coordination within the system. A new public health concept, Vade Mecum, aims to harmonize and professionalize family caregiver support initiatives in geriatric care settings in the Euregion Maas-Rhine. Exploration of the new concept recently started in Germany to gain in-depth insight into current support and the needs of the geriatric care team and family caregivers.

Thu, 08/16/2018 - 15:47

How continuity of care is experienced within the context of integrated palliative care: A qualitative study with patients and family caregivers in five European countries

Background: Patients with advanced diseases often experience deficient continuity of care.

Thu, 08/16/2018 - 15:01

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