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Care management, dementia care and specialist mental health services: and evaluation

Objective: To evaluate a model of intensive case management for people with dementia based in a community-based mental health service for older people.

Method: Quasi-experimental design. Individuals in one community team setting received case management and were compared with those in a similar team without such a service. Fortythree matched pairs were identified. Eligible older people and their carers were interviewed at uptake and again at 6 and 12 months.

Thu, 07/20/2017 - 15:12

Quality of life of Australian family carers: implications for research, policy and practice

As part of an international, multicentered project, the burden of care, health, and subjective well-being experienced by select Australian family carers supporting a relative with disability at home were investigated. Some 448 family carers residing in New South Wales and Tasmania completed a battery of instruments, including a self-report demographic survey, the Family Caregiver Burden Inventory, the General Health Questionnaire, and the Personal Wellbeing Index.

Thu, 07/20/2017 - 15:12

‘Not another form!’ Lessons for implementing carer assessment in health and social service agencies

This article addresses some of the issues that need to be considered in implementing carer assessment in health and social service agencies. It is based on findings from three studies involving the use of the CARE (Caregivers’ Aspirations Realities and Expectations) Assessment Tool in Canada, a comprehensive psychosocial instrument. The first study, carried out between 1999 and 2001, was aimed at developing the CARE Tool, and had as one of its objectives to evaluate the feasibility of its implementation into ongoing practice.

Thu, 07/20/2017 - 15:12

The impact of organisational culture on the delivery of person-centred care in services providing respite care and short breaks for people with dementia

Ensuring the development and delivery of person-centred care in services providing respite care and short breaks for people with dementia and their carers has a number of challenges for health and social service providers. This article explores the role of organisational culture in barriers and facilitators to person-centred dementia care.

Thu, 07/20/2017 - 15:12

Carers, ethics and dementia: a survey and review of the literature

Background: Much has been written on ethical issues in dementia, but usually from the point of view of the various professionals involved. Whilst there has been an increasing amount of interest in the psychosocial problems that face the carers of people with dementia, the ethical nature of some of these problems has largely been ignored.

Objective: To review the literature on ethical issues in dementia from the perspective of the main, non-professional carers of people with dementia.

Thu, 07/20/2017 - 15:12

Relying on informal care in the new century? Informal care for elderly people in England to 2031

The research reported here is concerned with the future of informal care over the next thirty years and the effect of changes in informal care on demand for formal services. The research draws on a PSSRU computer simulation model which has produced projections to 2031 for long-term care for England. The latest Government Actuary's Department (GAD) 1996-based marital status projections are used here. These projections yield unexpected results in that they indicate that more elderly people are likely to receive informal care than previously projected.

Thu, 07/20/2017 - 15:12

What causes problems in Alzheimer's disease: attributions by caregivers. a qualitative study

Objective: To gain insight into caregivers' understanding of the causes of behaviours they find problematic in people with Alzheimer's disease in order to inform the development of educational strategies.

Thu, 07/20/2017 - 15:12

Introducing "Support at Home: Interventions to Enhance life in Dementia (SHIELD)": five year research programme funded by the National Institute for Health Research

SHIELD is a research programme which aims to reduce disability, improve outcomes, and enhance quality of life for people with dementia and their carers. This article looks at the aims of three projects within the SHIELD programme: Maintenance Cognitive Stimulation Therapy (MCST); an Experienced Carer Package (ECP) to support carers; and an intensive Home Treatment Package (HTP).

Thu, 07/20/2017 - 15:11

Reliance on carer reports of early symptoms of dementia among adults with intellectual disabilities

As clinicians often rely on carer reports to identify adults with intellectual disabilities (ID) with early signs of dementia, this study focused on carer-reported symptoms to ascertain whether carer reports of decline in everyday function would be a more effective screening method to detect possible cases of dementia than reports of memory decline in older adults with ID. Subjects were 154 participants who were reassessed along with their carers two to three years after baseline.

Thu, 07/20/2017 - 15:11

Dying well with dementia: qualitative examination of end-of-life care

Background: People with dementia often die badly, receiving end-of-life care of poorer quality than that given to those who are cognitively intact.

Aims: To define good end-of-life care for people with dementia and identify how it can be delivered across care settings in the UK.

Method: In-depth interviews were conducted with 27 bereaved family carers and 23 care professionals recruited from the community, care homes, general hospitals and continuing care units. Data were analysed using the constant comparison method.

Thu, 07/20/2017 - 15:11

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