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MonAMI: Mainstream on Ambient Intelligence. E-inclusion Living Scaled Field Trial Experience in Spain

The MonAMI project was aimed to investigate the feasibility of the deployment of open platforms for Ambient Asssited Living (AAL) services provision and to test user acceptance and the usability of the services. The services were designed to give support in the areas of environmental control, security, and leisure. The participants included elderly persons with disabilities, care staff and informal carers. The concept of the open platform proved to be satisfactory for the provision of the services.

Thu, 07/20/2017 - 15:20

Who will care? Employment participation and willingness to supply informal care

The impact of informal care responsibilities on the willingness and ability of caregivers to undertake paid employment has been the Subject of a number of studies. In contrast, the effect of employment status on willingness to undertake informal care has been less well explored. This paper concentrates on this less-studied direction of causality using the data provided by 15 waves of the British Household Panel Survey. We find that employment participation and earnings both impact negatively on willingness to supply informal care.

Thu, 07/20/2017 - 15:20

A systematic review of hospital experiences of people with intellectual disability

Background: People with intellectual disability are at risk of poor hospital experiences and outcomes. The aims were to conduct a content and quality review of research into the acute hospital experiences of both people with intellectual disabilities and their carers, and to identify research gaps.

Thu, 07/20/2017 - 15:20

A systematic review of instruments related to family caregivers of palliative care patients

Support for family caregivers is a core function of palliative care. However, there is a lack of consistency in the way needs are assessed, few longitudinal studies to examine the impact of caregiving, and a dearth of evidence-based interventions. In order to help redress this situation, identification of suitable instruments to examine the caregiving experience and the effectiveness of interventions is required.

Thu, 07/20/2017 - 15:20

Stereotypes about caregiving and lessons from the Swedish panorama of care

This article analyzes the panorama of care provision in Sweden from the informal carers' perspective. We consider informal care, publicly financed services, for-profit agencies and voluntary organizations, using a survey conducted in 2009. Most cared-for persons with minor needs living in a separate household are helped also by others, but only a tenth use public services or other providers. About half of cared-for persons with major needs living in a separate household receive care also from other informal carers as well as public services.

Thu, 07/20/2017 - 15:20

A retrospective study of the behavioural and psychological symptoms of mid and late phase Alzheimer's disease

Aim: To document the behavioural and psychological symptoms in patients with a diagnosis of established Alzheimer's disease (AD) for at least 3 years.

Thu, 07/20/2017 - 15:20

The use of Talking Mats to support people with dementia and their carers to make decisions together

Policy guidelines insist that people with dementia should be involved in decisions about key life choices and transitions. However, as dementia affects both cognitive and communication difficulties, it becomes increasingly difficult to do this, and innovative and effective ways to support people with dementia and their carers to interact with each other are needed. This project, funded by Joseph Rowntree Foundation, examined if Talking Mats, a low-tech communication framework, could support family carers and people with dementia to discuss issues around daily living with each other.

Thu, 07/20/2017 - 15:20

Do older patients and their family caregivers agree about the quality of chronic illness care?

Objective: Family caregivers often accompany patients to medical visits; however, it is unclear whether caregivers rate the quality of patients' care similarly to patients. This study aimed to (1) quantify the level of agreement between patients' and caregivers' reports on the quality of patients' care and (2) determine how the level of agreement varies by caregiver and patient characteristics.

Design: Cross-sectional analysis. Participants: Multimorbid older (aged 65 and above) adults and their family caregivers (n = 247).

Thu, 07/20/2017 - 15:20

The formal support experiences of family carers of people with an intellectual disability who also display challenging behaviour and/or mental health issues : What do carers say?

This article reports the findings of a literature review of research that has explored the support experiences of family carers of a person with an intellectual disability who displays challenging behaviour and/or has a mental health problem. The purpose of this review is to provide an overview of the reported experiences of family carers from recent research studies, about their own support. Having discussed the search strategy, definitions of challenging behaviour and mental health/illness are presented.

Thu, 07/20/2017 - 15:20

Impacts on practitioners of using research-based carer assessment tools: experiences from the UK, Canada and Sweden, with insights from Australia

Researchers and practitioners in several Western countries have recently developed tools for assessing the situation of the carers of adults who are ill, elderly or have disabilities. The present article describes the impact of three such assessment tools, from Canada, the UK and Sweden, on the professional practice of assessors. All tools were tested in agency-based studies. Focus groups, workshops and interviews with assessors were employed to understand the impact on professionals and their practice.

Thu, 07/20/2017 - 15:20