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A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia

Background: Informal carers of cancer patients with cachexia face additional challenges to those encountered by informal carers in general because of the central role food and eating play in everyday life. Patient weight loss and anorexia, core features of cancer cachexia, are frequent causes of distress in caregivers. Identification of quality of life issues can inform the development of interventions for both caregivers and patients and facilitate communication with healthcare professionals.

Thu, 07/20/2017 - 15:13

Care home design for people with dementia: what do people with dementia and their family carers value?

Objectives: To report on the views of people with dementia who live in care homes and their family carers on aspects of design that are important to them, and discuss these in relation to developing physical care environments that respond to the wishes of people with dementia and their family carers.

Thu, 07/20/2017 - 15:13

Development of the carer well-being and support (CWS) questionnaire

Purpose – A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS).

Thu, 07/20/2017 - 15:13

Impact of caregiving on the health of family caregivers

OBJECTIVES: To identify the type of care provided by informal carers of dependent persons and the repercussions this care might have on the health of the carers, and to find the characteristics of both informal carers and cared-for people.

DESIGN: An observational cross-sectional study.

SETTING: This study was conducted in various towns in the province of Barcelona between January and December 1997 in primary health care.

PARTICIPANTS: Those taking part were 240 informal carers (IC) for dependent persons.

Thu, 07/20/2017 - 15:13

Working with carers in educational settings: developing innovations in practice

Purpose – It is generally agreed that carers in mental health care play a vital role in helping people to maintain their place in the community and reducing the time clients spend in hospital or residential settings. The purpose of this paper is to develop a conceptual approach to involving carers in higher education by acknowledging their contribution to improving practice and identify the impact upon student learning in mental health and social care professions. 

Thu, 07/20/2017 - 15:13

Selling social work by the pound? The pros and cons of agency care management

This article considers the experiences of a small group of agency care managers (n=23) working in London and the north of England. It was discovered that employment for occupationally migrant care managers can provide access to a potentially rich source of knowledge and skills, as well as a diverse and sometimes stimulating form of irregular employment. However, it was also discovered that work intensification, job insecurity and limited time spent with users and carers were common, and this further intensified the deskilling and lack of discretion which is common for many care managers.

Thu, 07/20/2017 - 15:13

Why do older people in New Zealand enter residential care rather than choosing to remain at home, and who makes that decision?

To investigate why older people with high support needs entered residential care and who made that decision. Longitudinal study in three New Zealand cities. Participants: older people (n = 144); (unpaid) caregivers (n = 47); service co-ordinators (n = 12); multidisciplinary team members (n = 4). Questionnaires: InterRAI Minimum Data Set Assessments Home Care; Caregiver Reaction Assessment; Mastery and control. Semi-structured interview questions focussing on decision-making, and concerns that might result in residential care entry.

Thu, 07/20/2017 - 15:13

The well-being of young people who care for a dependent relative: An interpretative phenomenological analysis

Developing health care systems have placed an emphasis on unpaid, informal care giving from family members as a community health resource. It is estimated that there are between 19,000 and 51,000 young carers in the UK who are at increased risk of physical and psychological ill health. Therefore, the aim of this study was to explore the personal experiences of young carers in relation to their well-being using interpretative phenomenological analysis (IPA). Semi-structured interviews were carried out with five young carers and the verbatim transcripts served as the data for an IPA.

Thu, 07/20/2017 - 15:13

An Overview of the Demographics Profiles and Initial Results from the British Columbia Young Carers Study

The article looks at the initial outcome of the British Columbia Young Carers Study. The study has been funded by the Hamptons Fund at the University of British Columbia and the Social Sciences and Humanities Research Council. One of the components of the study is to examine the prevalence of youth caring within the general adolescent population. The first stage of the study involved a survey of high school students at an urban centre in British Columbia. They found that 12.2 percent of the students are young carers.

Thu, 07/20/2017 - 15:13