CAREN logo

You are here

  1. Home
  2. Journal article

Journal article

Why the caregivers of bipolar patients need to be in constant touch with a physician: A qualitative study of text messages from patient caregivers to a physician

Background: The variety of caregiver's needs of bipolar patients signifies the importance of performing dedicated interventions to help this group of caregivers based on the cultural conditions of the country in which they live; the present study therefore seeks to address this issue through a different method. Methods: The families of 28 patients with bipolar disorder type 1 who were treated for at least two months by a single psychiatrist gradually entered the study over a six-month period.

Tue, 06/04/2019 - 14:16

Caregiving When There Is Family Conflict and Estrangement

Family conflict and estrangement can complicate caregiving tasks later in life. Research suggests that adult children who are estranged do not visit their parents when their parents are sick, despite societal pressures to reconcile and take care of them. Parents also report feeling surprised that their estranged children did not return home when they were in need, which ultimately solidified the estrangement. This article offers a broad discussion of the existing research on family conflict and caregiving, then focuses more specifically on family estrangement. 

Tue, 06/04/2019 - 14:02

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Background: The use of medical technology and the various contributing and interdepending human factors in home care have implications for patient safety. Although family caregivers are often involved in the provision of advanced home care, there is little research on their contribution to safety. The study aims to explore family caregivers in Home Mechanical Ventilation (HMV) safety experiences and how safety is perceived by them in this context.

Tue, 06/04/2019 - 13:57

Exploring dimensions of social support and resilience when providing care at the end of life: a qualitative study

Background: Research shows that formal and informal social support can facilitate resilience in carers.

Tue, 06/04/2019 - 13:53

Gender Differences in Social Support Received by Informal Caregivers: A Personal Network Analysis Approach

Social support is an important predictor of the health of a population. Few studies have analyzed the influence of caregivers' personal networks from a gender perspective. The aim of this study was to analyze the composition, structure, and function of informal caregiver support networks and to examine gender differences. It also aimed to explore the association between different network characteristics and self-perceived health among caregivers. We performed a social network analysis study using a convenience sample of 25 female and 25 male caregivers.

Tue, 06/04/2019 - 13:42

Spiritual needs experienced by the patient's family caregiver under Oncology palliative care

Objective: To understand the spiritual needs of the patients' family caregiver under Oncology palliative care. Method: A descriptive, qualitative study with 20 family caregivers of patients hospitalized in an Oncology palliative unit. The data were collected through a phenomenological interview, and analyzed by the method of Amadeo Giorgi supported in the Merleau-Ponty's Phenomenology of Perception.

Tue, 06/04/2019 - 13:36

Feasibility of implementing an electronic social support and resource visualization tool for caregivers in a neuro-oncology clinic

Purpose: The goals of this study were to assess the feasibility of a web-based application-electronic Social Network Assessment Program (eSNAP)-to automate the capture and visualization of family caregiver social network data of neuro-oncology patients. Methods: Caregivers were recruited from a neuro-oncology clinic at an NCI-designated comprehensive cancer center. Participants completed baseline questionnaires on a laptop in clinic assessing demographic characteristics.

Tue, 06/04/2019 - 13:29

Outcomes of an electronic social network intervention with neuro-oncology patient family caregivers

Introduction: Informal family caregivers (FCG) are an integral and crucial human component in the cancer care continuum. However, research and interventions to help alleviate documented anxiety and burden on this group is lacking. To address the absence of effective interventions, we developed the electronic Support Network Assessment Program (eSNAP) which aims to automate the capture and visualization of social support, an important target for overall FCG support.

Tue, 06/04/2019 - 13:17

Information sharing across generations and environments (InfoSAGE): study design and methodology protocol

Background: Longevity creates increasing care needs for healthcare providers and family caregivers. Increasingly, the burden of care falls to one primary caregiver, increasing stress and reducing health outcomes. Additionally, little has been published on adults', over the age of 75, preferences in the development of health information sharing with family members using online platforms.

Tue, 06/04/2019 - 13:06

Paying the Hidden Bill: How Public Health Can Support Older Adults and Informal Caregivers

The article explores how public health systems in the U.S. can support older adults and informal caregivers. Topics discussed include how informal caregivers, an unpaid labor pool, are the cornerstone of long-term care in the U.S., forming a national caregiving strategy and ways these caregivers could be paid through medicaid, paid sick leave and providing tax credits.

Mon, 06/03/2019 - 14:27