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Journal article

Care-related Out-of-Pocket Spending and Caregiving Consequences: Results from a Canadian Population-based Study

This study focused on out-of-pocket expenditures resulting from providing unpaid care to family members, friends, and neighbours. The main objective was to examine whether care-related out-of-pocket spending has a significant independent effect on caregiving consequences after controlling for the effects of other potential contributing factors. Cross-sectional data from the 2007 General Social Survey were used. Descriptive analyses and multivariate regression modeling were conducted.

Wed, 04/10/2019 - 10:00

Caregivers had neighbourhood support but perceived it unsatisfactory and worsened: England Community Life Survey, 2012–2014

There has been limited research studying neighbourhood support for caregivers. Therefore, the aim of the present study was to investigate the support from neighbourhoods between both caregivers and non-caregivers in a country-wide and population-based setting. Data were retrieved from England Community Life Survey, 2012–2014, a new annual household survey conducted by face-to-face interview since 2012, with a representative sample size of 5–6000 adult (aged 16 years and over) resident per year in England.

Mon, 04/08/2019 - 16:38

Development of an optimised key worker framework for people with dementia, their family and caring unit living in the community

Background In Australia, dementia is a national health priority. With the rising number of people living with dementia and shortage of formal and informal carers predicted in the near future, developing approaches to coordinating services in quality-focused ways is considered an urgent priority.

Mon, 04/08/2019 - 16:27

DSHS rolls out two new caregiver support services

Ultimately, programs aim to help seniors stay in homes. The Washington state Department of Social and Health Services has rolled out new services for unpaid caregivers. Bea Rector, Olympia-based director of the home and community services division within the Aging and Long Term Support Administration of DSHS, says the services are designed to help at-home clients and care recipients and may also have financial savings.

Mon, 04/08/2019 - 16:20

Older Adult Spouses with Multiple Chronic Conditions: Challenges, Rewards, and Coping Strategies

There is a paucity of research exploring how spouses to older adults with multiple chronic conditions make meaning of their caregiving experience. For this study, we asked: What is the experience of spousal caregivers to persons with multiple chronic conditions? We applied Thorne's interpretive description approach, interviewing 18 spouses who provided a rich description of their caregiving experience; interviews were transcribed verbatim and thematically analysed.

Mon, 04/08/2019 - 16:14

A National Profile Of End-Of-Life Caregiving In The United States

To date, knowledge of the experiences of older adults' caregivers at the end of life has come from studies that were limited to specific diseases and so-called primary caregivers and that relied on the recollections of people in convenience samples. Using nationally representative, prospective data for 2011, we found that 900,000 community-dwelling Medicare beneficiaries ages sixty-five and older who died within the following twelve months received support from 2.3 million caregivers. Nearly nine in ten of these caregivers were unpaid.

Mon, 04/08/2019 - 16:07

Do Personal Budgets Increase the Risk of Abuse? Evidence from English National Data

With the continued implementation of the personalisation policy, Personal Budgets (PBs) have moved to the mainstream in adult social care in England. The relationship between the policy goals of personalisation and safeguarding is contentious. Some have argued that PBs have the potential to empower recipients, while others believe PBs, especially Direct Payments, might increase the risk of abuse.

Mon, 04/08/2019 - 15:47

Stakeholder Meeting: Integrated Knowledge Translation Approach to Address the Caregiver Support Gap

Family caregivers are an integral and increasingly overburdened part of the health care system. There is a gap between what research evidence shows is beneficial to caregivers and what is actually provided. Using an integrated knowledge translation approach, a stakeholder meeting was held among researchers, family caregivers, caregiver associations, clinicians, health care administrators, and policy makers.

Mon, 04/08/2019 - 15:32

Valuing Informal Care in Ireland: Beyond the Traditional Production Boundary

Measures of economic output captured by traditional national account metrics emphasise the importance of paid work over unpaid work which can lead to inefficient policy decision making. We utilise Irish census data to measure the economic value of informal care in Ireland. Our results reveal the considerable value of informal care in Ireland ranging between E2.1 and E5.5 billion, depending on valuation approach.

Mon, 04/08/2019 - 15:27

Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers

Purpose Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain. Methods Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC.

Mon, 04/08/2019 - 15:13