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Web of science - exported 12/7/2016

Coping as a caregiver: A question of strain and its consequences on life satisfaction and health-related quality of life

A majority of us will at some point in our lives take care of family members, relatives and friends in need of assistance. How will this affect us? Strain related to life satisfaction (LS) and health related quality of life (HRQoL) among caregivers aged 60 years and older has not been previously studied.

Thu, 07/20/2017 - 15:16

The immediate needs of relatives during hospitalisation of acutely ill older relatives

The main aim of this study was to explore the immediate needs of the relatives of acutely ill older people during hospitalisation. The research question posed was: ‘What are the immediate needs of the relatives of acutely ill older people in the hospital setting?’

Thu, 07/20/2017 - 15:16

Review of ICT-based services for identified unmet needs in people with dementia

Some of the needs that people with dementia and their informal carers currently perceive as insufficiently met by regular care and support services might be alleviated, or even be met, using modern Information and Communication Technology (ICT). The study described in this paper was designed to provide an insight into the state of the art in ICT solutions that could contribute to meet the most frequently mentioned unmet needs by people with dementia and their informal carers.

Thu, 07/20/2017 - 15:16

Reducing emotional distress in people caring for patients receiving specialist palliative care - Randomised trial

Background: Caring for relatives with advanced cancer may cause psychological and physical ill health.

Aims: To evaluate the effectiveness of increased support for distressed, informal carers of patients receiving palliative care.

Thu, 07/20/2017 - 15:16

Feelings of rewards among family caregivers during ongoing palliative care

Palliative family caregivers appear to experience the rewards of caregiving concurrent with burdens and negative feelings. Relatively few studies have attended to the positive and rewarding aspects in palliative family caregiving. In addition, most studies on rewards are retrospective and examine the experiences of bereaved family caregivers. The present study aimed at describing feelings of reward among family caregivers during ongoing palliative care. A further aim was to compare the experience of rewards in relation to sex and age.

Thu, 07/20/2017 - 15:16

Social problem-solving telephone partnerships with family caregivers of persons with stroke

As individuals with significant functional deficits are discharged earlier from the hospital, health care professionals are challenged to develop cost-effective intervention programmes that will assist family members to manage caregiving problems in the home. The literature suggests that social problem-solving can positively influence the physical and psychological well-being of individuals. This paper describes a social problem-solving training procedure provided primarily by telephone to assist family caregivers to manage caregiving issues in the home.

Thu, 07/20/2017 - 15:16

Chronic illness and informal carers: 'Non-persons' in the health system, neither carers, workers or citizens

I give an account of disquieting experiences in relation to my treatment and those with chronic illness in the acute system during my 5 years’ experience as an informal caregiver. People with chronic illness (and their caregivers), particularly stroke survivors face a biased, frustrating and even dangerous acute care hospital system where they are second class. Well-being and stability from rehabilitation and self-management can be undermined.

Thu, 07/20/2017 - 15:16

The meaning of support as narrated by family carers who care for a senior relative at home

The authors' aim in this study is to illuminate the meaning of support as narrated by family members who care for a senior relative at home. This study originates from a context of advanced in-home palliative care in Sweden. Twenty individuals who cared for a senior relative at home participated. Narrative interviews resulted in a text, which the authors analyzed in three recurring phases, naive understanding, structural analyses, and comprehensive understanding, using a phenomenological hermeneutical method.

Thu, 07/20/2017 - 15:16

Contributions of a Retreat Weekend to the Healing and Coping of Cancer Patients' Relatives

Relatives play a key role in the daily support and care of cancer patients. This role, however, can negatively affect relatives physically, psychologically, emotionally, and spiritually, challenging their health and well-being. Consequently, this could inhibit relatives’ abilities to continue in their roles as caregivers. Although various studies have examined different interventions for the relatives of cancer patients, no formal research has been published on the role that retreat weekends play in their cancer journeys.

Thu, 07/20/2017 - 15:16

Use of functioning-disability and dependency for case-mix and subtyping of schizophrenia

Background and Objectives: To evaluate the utility of the constructs functioning and disability (F&D) and dependency for case-mix and subtyping of patients with schizophrenia by psychosocial, clinical, use of services and attention received from informal carers. Methods: A randomly selected total of 205 people with schizophrenia, and their careers were evaluated through PANSS, DAS-sv, Objective and Subjective Burden Scale (ECFOS-II) and use of services.

Thu, 07/20/2017 - 15:16

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