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Dementia

Respite care and short breaks: what works and at what cost?

It is important to find out which services benefit people with dementia and their carers most: in particular whether carers gain more support from respite care and short breaks or from other services. Hilary Arksey and Helen Weatherly review the research evidence to date and comment on its limitations, given the wide range of different services covered.

Thu, 07/20/2017 - 15:14

Strategies for the relief of burden in advanced dementia care-giving

Aim.  This paper is a report of a study conducted to uncover the strategies that women caregivers of relatives with advanced dementia use to rest from care-giving.

Background.  Respite consists of activities and situations that briefly take caregivers away from their care-giving responsibilities. Qualitative studies are focusing on respite as an outcome and are deepening our knowledge about the experience of caregivers’ rest. The strategies that caregivers use to relieve the burden, however, are not fully known.

Thu, 07/20/2017 - 15:14

Dementia care costs and outcomes: a systematic review

Objective: We reviewed evidence on the cost-effectiveness of prevention, care and treatment strategies in relation to dementia.

Methods: We performed a systematic review of available literature on economic evaluations of dementia care, searching key databases and websites in medicine, social care and economics. Literature reviews were privileged, and other study designs were included only to fill gaps in the evidence base. Narrative analysis was used to synthesise the results.

Thu, 07/20/2017 - 15:14

Coping with caring: profiles of caregiving by informal carers living with a loved one who has dementia

Background and aim: While the number of people suffering from dementia in the Netherlands will double in the next 25 years, there are no plans to expand the capacity of residential care facilities for these patients. This will almost inevitably lead to an increase in the burden placed on informal carers. We investigated how caregivers living with a loved one who has dementia experience their caregiving situation.

Thu, 07/20/2017 - 15:14

Taking things one day at a time

Describes a support group where family carers new to the challenges of dementia can learn more without loosing their privacy. 'One Day at a Time' is a series of monthly talks run by the Dementia Development Team within social services in Kensington and Chelsea who want to develop their understanding and knowledge of dementia, without disclosing all in an emotional support group.

Thu, 07/20/2017 - 15:14

'Sustaining Place' - a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds

Aims and objectives: This paper presents a theory explaining the processes used by informal carers of people with dementia to mange alterations to their, and people with dementias' relationships with and places within their social worlds.

Thu, 07/20/2017 - 15:14

Improving the lives of people with dementia and their carers: the Prime Minister's challenge and a challenge for us all

The profile of adult social care has probably never been higher and one of the biggest questions is how to manage demographic pressures on services as resources reduce, while aiming to improve outcomes and maintain quality. One group which brings these issues into sharp focus is the rising number of people with dementia and their carers. In this particular instance we have the additional focus given by the launch of the Prime Minister's dementia challenge.

Thu, 07/20/2017 - 15:14

Community occupational therapy for people with dementia and their family carers : a national survey of United Kingdom occupational therapy practice

Introduction: A national survey was conducted with United Kingdom (UK) occupational therapists to scope occupational therapy service provision for people with dementia and their family carers in the community.

Method: This was an online questionnaire with topics on occupational therapists’ roles, service provision, referral, assistive technology and assessment tools. Recruitment was through direct invitation, and promotion via occupational therapy networks, websites and newsletters.

Thu, 07/20/2017 - 15:14

Survival of persons with Alzheimer's disease: caregiver coping matters

Purpose: Although persons with Alzheimer's disease (AD) require increasingly more assistance with activities of daily living as their disease progresses, the caregiving environment has received little attention as a source of predictors of their survival time.

Thu, 07/20/2017 - 15:14

The role of a dementia trailblazer

Colin Dugdale, BSc, RMN, RGN, dementia trailblazer, NHS Executive North West. As a community mental health nurse team leader I was seconded to the NHS Executive North West for the role of dementia trailblazer to develop the Admiral Nurse Service in the north-west of England.

Thu, 07/20/2017 - 15:14

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