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Dementia awareness, beliefs and barriers among family caregivers in Pakistan

Objectives: Dementia research and services in Pakistan are limited. The following was explored in experiences of family caregivers of people with dementia in Pakistan: (a) to determine whether culture and religion play a role in caregiving; (b) to draw insights on how family caregivers cope, what barriers they face and what help they would be willing to accept and (c) to determine how these findings could be used to raise awareness and influence public policies in improving the lives of families living with dementia.

Wed, 02/02/2022 - 14:44

Comfort Needs of Cancer Family Caregivers in Outpatient Palliative Care

Background: Rapid expansion of outpatient palliative care has been fueled by the growing number of people living with cancer and other chronic illnesses whose symptoms are largely managed in the community rather than inpatient settings. Nurses and other palliative care professionals support seriously ill patients and their families, yet little research has specifically examined the needs of cancer family caregivers receiving services from outpatient palliative care teams.

Mon, 01/31/2022 - 18:21

Caring for Patients with Psychosis: Mental Health Professionals’ Views on Informal Caregivers’ Needs

Aims: The aim of this study was to explore the views of mental health professionals regarding the needs of the informal caregivers of patients with chronic psychotic syndrome. Design: A qualitative research design was used. The sample consisted of 12 mental health professionals selected by a purposive sampling strategy. Data were collected through semistructured, face to face interviews. Framework analysis was used to analyze qualitative data and establish main themes and subthemes.

Thu, 01/27/2022 - 14:12

Burden on family caregivers of children and adolescent in immediate post hematopoietic stem cell transplantation

Objective: To evaluate the burden on family caregivers of children and adolescents in immediate post hematopoietic stem cell transplantation. Method: Study of quantitative nature, of analytical and traverse type, accomplished in two institutions of health with 31 caregivers of children and adolescents in immediate post transplantation. The data collection was accomplished between October of 2018 and June of 2019. The caregivers' social demographic profile was characterized, and the burden was evaluated by Caregiver Burden Scale.

Sat, 01/15/2022 - 14:16

Pathological narcissism: A study of burden on partners and family

Pathological narcissism is characterized by impaired interpersonal functioning, but few studies have examined the impact of the disorder on those living in a close relationship. Participants (N = 683; comprising romantic partners [77.8%], mothers [8.5%] or other family members [10%]) in a close relationship with a relative with pathological narcissism completed measures assessing levels of grief, burden, mental health, and coping style.

Tue, 04/06/2021 - 12:16

Partnership between staff and family in long-term care facility: a hybrid concept analysis

The purpose of this study was to examine the attributes and verify the definition of the partnership concept using the hybrid model. A hybrid model was used to develop the concept of partnership. The hybrid model consists of three phases: theoretical, fieldwork and final analytical. In the theoretical phase, a working definition of partnership was developed by an extensive review with 35 studies. The fieldwork phase comprised seven focused-group interviews with 35 participants consisted of 25 facility staff and 10 family caregivers in long-term care facilities.

Tue, 04/06/2021 - 12:12

Family caregivers' burden in inflammatory bowel diseases: An integrative review

Inflammatory bowel disease (IBD), including Crohn's and ulcerative colitis diseases, is characterized by clinical periods of remission and relapse. Excessive care stress can have long-term negative physical and psychological consequences not only for caregivers but also for the recipients of care. This integrative review aims to identify, describe, and synthesize the results of current available research focused on the burdens of IBDs on family caregiver. An integrative review was performed using Whittemore and Knafl methodology.

Mon, 03/22/2021 - 15:38

End of life care for long-term neurological conditions: A meta-ethnographic review of the experiences of informal carers

Background: Family and friends are key providers of care for people living with a long-term neurological condition. Neurological conditions are a significant global contributor to disability and premature death.

Mon, 03/22/2021 - 10:36

Emotional and physical exhaustion of family caregivers

Objective: The study's main purpose has been to verify the profile of musculoskeletal disorders, emotional burden and health profile of caregivers of people bearing central nervous system injury sequelae. Methods: It is a descriptive study with 23 participating caregivers. There were applied musculoskeletal injury tests (Nordic Musculoskeletal Questionnaire), overload tests (Caregiver Burden Scale) and the Physical Mobility and Transfer Risk Assessment Scale.

Mon, 03/22/2021 - 10:12

The Complexity of Caring for People with Mental Disorders: Family Challenges in Contributing to Horticultural Therapy

The fluctuation of psychological conditions among people with mental disorders are suspected to burden the family caregiver. Horticultural therapy has been known as an effective complementary therapy to enhance people mental health. Family assistance in the implementation of horticultural therapy is a form of family caring which contributes greatly in determining the achievement of horticultural therapy goals.

Thu, 03/18/2021 - 14:43

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