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quality of life

The quality of life of family caregivers of adults with intellectual disabilities in Taiwan

Background  Taiwanese family carers of people with intellectual disabilities not only suffer from long-term stress but also need to cope with social difficulties. The aim of this study is to evaluate the quality of life (QOL) among family carers of people with intellectual disabilities.

Thu, 07/20/2017 - 15:08

Attachment representations in people with dementia and their carers: implications for well-being within the dyad

Objectives: The process of developing and living with dementia may activate attachment feelings and behaviours in people with dementia (PwD) and their carers. By obtaining information from both PwD and carer, we aimed to provide information on the nature and concordance of attachment patterns within the dyad and to examine the relative contribution of attachment representations in PwD and carers to the well-being of both parties.

Thu, 07/20/2017 - 15:08

Including older people with dementia in research: challenges and strategies

This paper examines key challenges and strategies for including older people with dementia in an ethnographic study of quality of life in institutional care settings. The methods of interview and observation are described in relation to meeting four research challenges: verbal communication impairment, memory loss, decision-making capacity, and emotional disposition.

Thu, 07/20/2017 - 15:08

The impact of gastrostomy in motor neurone disease: challenges and benefits from a patient and carer perspective

Objectives This study explores the experience of gastrostomy insertion from the perspective of the patients and their informal carers. Gastrostomy feeding is commonly used to support motor neurone disease (MND) patients with dysphagia. However, there is lack of information describing patient and carer experiences following gastrostomy insertion. The effect of gastrostomy on quality of life for these patients and their family is currently not well understood.

Thu, 07/20/2017 - 15:08

Information and communication technologies for informal carers and paid assistants: benefits from micro-, meso-, and macro-levels

The aim of this study was to explore the benefits of information and communication technologies (ICT)-based services for informal carers and paid assistants of older people living in the community. We cross-case analysed the effects of twelve initiatives in the EU, the USA and Canada, based on their individual analysis documented through interviews with promoters and a literature review.

Thu, 07/20/2017 - 15:08

Female family carers for survivors of stroke: occupational loss and quality of life

Purpose: This study examined activity changes in female carers for working-age husbands with mild to moderate stroke. It explored whether carers who reduced or quitted some of their valued activities had more burden and decreased health compared with other carers who continued their valued activities.

Thu, 07/20/2017 - 15:08

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