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  2. How do family-caregivers of patients with advanced cancer provide symptom self-management support? A qualitative study

How do family-caregivers of patients with advanced cancer provide symptom self-management support? A qualitative study

The family-caregiver role is of critical importance to the success of symptom-related self-management of patients with advanced cancer. This study examined the perspectives of patients and family-caregivers regarding the role of the family-caregiver in symptom-related self-management support (SMS). Semi-structured interviews were conducted in patients with advanced cancer experiencing significant symptom burden and their family-caregivers. An inductive content analysis approach was used to analyse data. Eleven patients and ten family caregivers were included. Identified themes were 1) engaging in specific symptom-related SMS ; 2) interacting with health care professionals ; and 3) balancing patient need versus expectation. These themes were applicable to both the family-caregiver and patient cohorts, regardless of the individual symptom profile of each patient. The role of family-caregivers of patients with advanced cancer is complex and varied in providing symptom-related SMS at home; often requiring family-caregivers to have diverse knowledge and skills in the management of a range of cancer-related symptoms. Health care professionals can support family-caregivers by anticipating needs, tailoring evidence-based information to those needs, and ensuring family-caregivers have an appropriate contact point for advice or help.

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Key Information

Type of Reference
Jour
Type of Work
Journal article
Publisher
Elsevier
ISBN/ISSN
1462-3889
Publication Year
2020
Issue Number
October
Journal Titles
European Journal of Oncology Nursing
Volume Number
48
Start Page
101795