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Jones, L.

Care providers’ and patients’ attitudes toward using electronic-patient reported outcomes to support patients with traumatic brain injury: a qualitative study (PRiORiTy)

Objectives: To (a) identify residual symptoms and deficits resulting from a traumatic brain injury (TBI) and impact on patients’ and their families’ quality of life; (b) explore views and experience of care providers, researchers, patients, and carers of using PROMs; and (c) explore their attitudes toward reporting symptoms and impacts on an electronic platform. Methods: Qualitative semi-structured interviews with people with TBI and their carers; health-care professionals, researchers, and third sector staff members working with people with TBI.

Mon, 08/03/2020 - 15:06

Experiences of adult stroke survivors and their parent carers: a qualitative study

Objective: To explore the experiences of adult stroke survivors and their parent carers.

Design: Qualitative methodology: interpretative phenomenological analysis. Setting: Six residential areas across England and south Wales. Participants: Six adult stroke survivors (aged 27–46), six mothers (aged 59–76) and five fathers (aged 55–76).

Thu, 07/20/2017 - 15:21

Developments in Health Communication in the 21st Century

In this article, five papers that formed the Special Issue for the fourth International Association of Language and Social Psychology Taskforce on health communication are revisited. Our starting point is Gallois's epilogue and the six themes she identified from those papers. These themes are invoked to explore where health communication is moving in the 21st century. Burgeoning work on intergroup communication in this context, patient voice, minority groups, and the role of the carer are highlighted.

Thu, 07/20/2017 - 15:17

Reducing emotional distress in people caring for patients receiving specialist palliative care - Randomised trial

Background: Caring for relatives with advanced cancer may cause psychological and physical ill health.

Aims: To evaluate the effectiveness of increased support for distressed, informal carers of patients receiving palliative care.

Thu, 07/20/2017 - 15:16

Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach

Background: The prevalence of dementia is rising worldwide and many people will die with the disease. Symptoms towards the end of life may be inadequately managed and informal and professional carers poorly supported. There are few evidence-based interventions to improve end-of-life care in advanced dementia. 

Aim: To develop an integrated, whole systems, evidence-based intervention that is pragmatic and feasible to improve end-of-life care for people with advanced dementia and support those close to them. 

Thu, 07/20/2017 - 15:09