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Kendall, M.

Living with advanced heart failure: a prospective, of patients and their carers based study community

Background: Services for people with heart failure are under-developed. The perspectives of patients, their informal and professional carers should inform development of service models.

Aim: To describes how patients and carers view health and social care in the last year of life.

Thu, 07/20/2017 - 15:14

Patient and carer perspectives: a man with inoperable lung cancer

Patient and family perspectives are vital in conceptualising quality of life in the dying (1). The principles of a 'good death' have been established (2,3), and multidimensional frameworks exist for understanding and evaluating end-of-life care (4). However, care often falls short of the ideal, or is offered late. To examine why, we set out to understand the holistic needs of 40 patients dying from lung cancer or cardiac failure and their carers, and to explore to what degree these needs were identified and addressed by service providers (5).

Thu, 07/20/2017 - 15:11

Piloting a new approach in primary care to identify, assess and support carers of people with terminal illnesses: A feasibility study

Background: General practices in the United Kingdom are encouraged to have a protocol for the identification of carers and a mechanism for social care referral. However, a minority of carers are identified and those caring for someone with a terminal illness often cope until the situation becomes overwhelming. Earlier identification could enable more timely support.

The aim of this project was to model and pilot a systematic approach to identify, assess and support carers of people with supportive and palliative care needs in primary care.

Thu, 07/20/2017 - 15:09